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CAMPING FOR THE DISABLED
20 Burton Close, Dawley, Telford, TF4 2BX
Tel:01743 761889
Fax:01743 761149
THE CAMR
Porton Down, Salisbury, Wiltshire, SP4 0JG
Tel:01980 612100
Fax:01980 611096
Email:bdd@camr.org.uk
Website:http://www.camr.org.uk
CANCER BACUP SCOTLAND
30 Bell Street, Galsgow, G1 1LG
Helpline:0808 800 1234
Tel:0141 553 1553
Fax:0141 553 2686
Email:jennyw@cancerbacup.org
Website:http://www.cancerbacup.org.uk
CANCER CARE SOCIETY
11 The Cornmarket, Romsey, Hampshire, SO51 8GB
Tel:02380 672200
Email:info@cancerbacup.org
Website:http://www.cancerbacup.org.uk
CANCERLINK
11-21 Northdown Street, London, N1 9BN
Helpline:0808 808000
Tel:020 7833 2818
Fax:020 7833 4963
Email:cancerlink@cancerlink.org.uk
CARDIOMYOPATHY ASSOCIATION
40 The Metro Centre, Tolpits Lane, Watford, Herts, WD1 8SB
Helpline:0800 0181 024
Tel:01923 249977
Fax:01923 249987
Email:cmaassoc@aol.com
Website:http://www.cardiomyopathy.org
CARERS NATIONAL ASSOCIATION
20-25 Glasshouse Yard, London, EC1A 4JT
Helpline:freefone: 0808 808 7777
Tel:020 7490 8818
Fax:020 7490 8824
Email:internet@ukcarers.org
Website:http://www.carersuk.demon.co.uk
CENTRAL PUBLIC HEALTH LABORATORY
61 Colindale Avenue, London, NW9 5HT
Tel:020 8200 4400
Fax:020 8200 7874
CEREBRAL PALSY HELPLINE
PO Box 833, Milton Keynes, MK12 5NY
Helpline:0808 800 3333
Tel:01908 321047
Fax:01908 321051
Email:cphelpline@scope.org.uk
Website:http://www.scope.org.uk
CHAI-LIFELINE
Norwood House, Harmony Way, off Victoria Road, Hendon, NW4 2DZ
Helpline:020 8202 4567
Tel:020 8202 2211
Fax:020 8202 2111
Email:info@chai-lifeline.org.uk
THE CHARTERED SOCIETY OF PHYSIOTHERAPY
14 Bedford Row, London, WC1R 4ED
Helpline:020 7306 6633
Tel:020 7306 6666
Fax:020 7306 6611
Website:http://www.csp.org.uk
CHEST, HEART & STROKE SCOTLAND
65 North Castle Street, Edinburgh, EH2 3LT
Helpline:0845 077 6000
Tel:0131 225 6963
Fax:0131 220 6313
Email:admin@chss.org.uk
CHILD DEATH HELPLINE
Bereavement Services Department, Great Ormond Street Hospital, London, WC1N 3JH
Helpline:0800 282986
Tel:020 7813 8550/1 (Admin)
Fax:020 7813 8516
Email:tracey.wolfin@gosh.tr.nthames.nhs.uk
CHILD GROWTH FOUNDATION
2 Mayfield Avenue, Chiswick, London, W4 1PW
Tel:020 8995 0257 020 8994 7625
Fax:020 8995 9075
Email:cgflondon@aol.com
Website:http://www.cgf.org.uk
CHILD PSYCHOTHERAPY TRUST
Star House, 104-108 Grafton Road, London, NW3 4BD
Tel:020 7284 1355
Fax:020 7284 2755
Email:http://www.childline.org.uk
CHILDREN'S LIVER DISEASE FOUNDATION
36 Great Charles Street, Birmingham, B3 3JY
Helpline:0121 212 3839
Tel:0121 212 3839
Fax:0121 212 4300
Email:info@childliverdisease.org
Website:http://www.childliverdisease.org
CHILDRENS HEAD INJURY TRUST
c/o Neurosurgery, The Radcliffe Infirmary, Woodstock Road, Oxford, OX2 6HE
Tel:01865 224786
Fax:01865 224786
Email:http://glaxocentre.merseyside.org/chit.html
CLIC - CANCER AND LEUKAEMIA IN CHILDHOOD
12-13 King Square, Bristol, BS2 8JH
Tel:0117 924 8844
Fax:0117 924 4505
Email:email@clic-charity.demon.co.uk
Website:http://www.clic.uk.com
COLLEGE OF HEALTH
St Margaret's House, 21 Old Ford Road, London, E2 9PL
Helpline:020 8983 1133
Tel:020 8983 1225
Fax:020 8983 1553
Email:enquiry@tcoh.demon.co.uk
THE COLLEGE OF OSTEOPATHS
13 Furzehill Road, Borehamwood, Herts, WD6 2DG
Helpline:020 8905 1937
Tel:020 8905 1937
Fax:020 8953 0320
Email:coet.admin@tesco.net
COLLEGE OF PHARMACY PRACTICE
University of Warwick Science Park, Barclays Venture Centre, Sir William Lyons Road, Coventry, CV4 7EZ
Tel:024 7669 2400
Fax:024 7669 3069
Email:cpp@collpharm.co.uk
Website:http://www.collpharm.org.uk
COLON CANCER CONCERN
4 Rickett Street, London, SW6 1RU
Helpline:0171 381 4711
Tel:020 7381 9711
Fax:020 7381 5752
Email:http://www.coloncancer.org.uk
COMMITTEE ON SAFETY OF MEDICINES
Market Towers, 1 Nine Elms Lane, London, SW8 5NQ
Helpline:020 7273 0451
Tel:020 7273 3000
Fax:020 7273 0334
Email:leslie.whitbread@mca.gov.uk
Website:http://www.open.gov.uk/mca/mcahome.htm
THE COMPASSIONATE FRIENDS
53 North Street, Bristol, BS3 1EN
Helpline:0117 953 9639
Tel:0117 966 5202
CONTACT A FAMILY
170 Tottenham Court Road, London, W1P 0HA
Helpline:020 7383 3555
Tel:020 7383 3555
Fax:020 7383 0259
Email:info@cafamily.org.uk
Website:http://www.cafamily.org.uk
THE CONTINENCE FOUNDATION
307 Hatton Square, 16 Baldwins Gardens, London, EC1N 7RJ
Helpline:020 7831 9831 (M-F 9.30-4.30)
Tel:020 7404 6875
Fax:020 7404 6876
Email:continence.foundation@dial.pipex.com
CORONARY PREVENTION GROUP
2 Taviton Street, London, WC1H OBT
Tel:020 7927 2125
Fax:020 7927 2127
Email:cpg@lshtm.ac.uk
Website:http://www.healthnet.org.uk
COUNCIL FOR DISABLED CHILDREN
National Children's Bureau, 8 Wakley Street, Islington, London, EC1V 7QE
Helpline:020 7843 6058/6061
Tel:020 7843 6058
Fax:020 7278 9512
Email:jkhan@ncb.org.uk
Website:http://www.ncb.org.uk
CRUSE BEREAVEMENT CARE
Cruse House, 126 Sheen Road, Richmond, Surrey, TW9 1UR
Helpline:020 8332 7227
Tel:020 8940 4818
Fax:020 8940 7638
CYSTIC FIBROSIS TRUST
11 London Road, Bromley, Kent, BR1 1BY
Tel:020 8464 7211
Fax:020 8313 0472
Email:enquiries@cftrust.org.uk
Website:http://www.cftrust.org.uk
DEBRA (DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION)
DEBRA House, 13 Wellington Business Park, Dukes Ride, Crowthorne, Berks, RG45 6LS
Helpline:01344 771961
Tel:01344 771961
Fax:01344 762661
Email:debra.uk@btinternet.com
Website:http://www.debra.org.uk
DEPRESSION ALLIANCE
35 Westminster Bridge Road, London, SE1 7JB
Helpline:020 7633 9929 - ansaphone only
Tel:020 7633 0557
Fax:020 7633 0559
Email:hq@depressionalliance.org
Website:http://www.depressionalliance.org
DERMATOMYOSITIS & POLYMYOSITIS SUPPORT GROUP
146 Newtown Road, Woolston, Southampton, Hants, SO19 9HR
Helpline:023 80 396402
Tel:023 80 449708
Fax:023 80 396402
Email:ye72@dial.pipex.com
Website:http://www.dpsg.dial.pipex.com
DIAL UK
Park Lodge, St Catherines Hospital, Tickhill Road, Doncaster, South Yorkshire, DN4 8QN
Tel:01302 310123
Fax:01302 310404
Email:dialuk@aol.com
Website:http://members.aol.com/dialuk
DIGESTIVE DISORDERS FOUNDATION
3 St Andrews Place, London, NW1 4LB
Tel:020 7486 0341
Fax:020 7224 2012
Email:ddf@digestivedisorders.org.uk
Website:http://www.digestivedisorders.org.uk
DISABILITY ACTION - NORTHERN IRELAND
2 Annadale Avenue, Belfast, BT7 3JR
Tel:028 9049 1011
Fax:028 9049 1627
Email:hq@disabilityaction.org
Website:http://www.disabilityaction.org
DISABILITY ALLIANCE
Universal House, 88-94 Wentworth Street, London, E1 7SA
Helpline:020 7247 8763 Mon & Wed 2-4
Tel:020 7247 8776
Fax:020 7247 8765
DISABILITY SCOTLAND
Princes House, 5 Shandwick Place, Edinburgh, EH2 4RG
Helpline:0131 229 8632
Tel:0131 229 8632
Fax:0131 229 5168
Email:enquiries@disabilityscotland.org.uk
Website:http://www.disabilityscotland.org.uk
DISABILITY WALES ANABLEDD CYMRU
Llys Ifor, Crescent Road, Caerphilly, CF83 1XL
Helpline:0800 731 6282
Tel:029 2088 7325
Fax:029 2088 8703
Email:info@dwac.demon.co.uk
THE DISABLED DRIVERS ASSOCIATION
National Headquarters, Ashwellthorpe, Norwich, NR16 1EX
Helpline:01508 489449
Tel:01508 489449
Fax:01508 488173
Email:ddahq@aol.com
Website:http://www.justmobility.co.uk/DDA/
DISABLED LIVING FOUNDATION
380-384 Harrow Road, London, W9 2HU
Helpline:0870 603 9177
Tel:020 7289 6111
Fax:020 7266 2922
Email:http://www.dlf.org.uk
DISABLED MOTORISTS FEDERATION
Unit 2A, Atcham Industrial Estate, Shrewsbury, SX4 4UG
Tel:01743 761181
Fax:01742 761149
Email:jkillick2214@compuserve.com
DISFIGUREMENT GUIDANCE CENTRE & LASERFAIR
P O Box 7, Cupar, Fife, KY15 4PF
Helpline:01337 870281
Tel:01337 870281
Fax:01337 870310
DOCTORS SUPPORT NETWORK
Tel:07071 223372
DOWNS SYNDROME ASSOCIATION
15 Mitcham Road, Tooting, London, SW17 9PG
Helpline:020 8682 4001
Tel:020 8682 4001
Fax:020 8682 4012
Website:http://www.downs-syndrome.org.uk
DRINKLINE
1st Floor, Cavern Court, 8 Mathew Street, Liverpool, L2 6RE
Helpline:0800 917 8282
Tel:0151 227 4150
Fax:0151 227 4019
Email:mmclean@healthwise.org.uk
DRUG INFORMATION CENTRE (LEEDS)
Pharmacy Department, The General Infirmary, Great George Street, Leeds, LS1 3EX
Tel:0113 392 3547
Fax:0113 244 5849
THE DRUG & POISON INFORMATION CENTRE (BELFAST)
The Royal Hospitals NHS Trust, Grosvenor Road, Belfast, BT12 6BA
Tel:028 9024 0503
Fax:028 9024 8030
Email:nirdic@royalhospitals.n-i.nhs.uk
DRUGS AID
16 Clive Street, Caerphilly, CF83 1GE
Tel:029 2088 1000
Fax:029 2088 1008
DYSPRAXIA FOUNDATION
8 West Alley, Hitchin, Herts, SG5 1EG
Helpline:01462 454986
Tel:01462 455016
Fax:01462 455052
THE DYSTONIA SOCIETY
46-47 Britton Street, London, EC1M 5UJ
Helpline:020 7490 5671
Tel:020 7490 5671
Fax:020 7490 5672
ADDITIONAL HELPLINES AND SELF HELP GROUPS C-D
CAESAREAN SUPPORT NETWORK - Yvonne Williams, 55 Coojl Drive, Douglas, Isle of Man, 1M2 2HF. Tel 01624 661 269/Fax 01624 661 269. Help, information and advice for those who have had or who may need a Caesarean section.
CALVE-PERTHES DISEASE see under Perthes Disease
BREAST CANCER CARE - Kiln House, 210 New Kings Road. London, 5W6 4NZ. Tel 0171 384 2984/Fax 384 3387. Practical advice, information and support. Prosthesis fititng. 1 to 1 emotional support from volunteers. Heipline on 0500 245 345.
BRITISH ASSOC FOR COUNSELLING - 1 Regent Place, Rugby, CV21 2PJ. Tel 01788 550 899.A4 sac for a comprehensive list of local counsellors.
BRISTOL CANCER HELP CENTRE - Grove House, Comwallis Grove, Clifton, Bristol,BS8 4PG.Tel 0117980 9500/Fax 0117923 9184/Ilelpline 0117980 9505. Complementary therapies and self-help approaches.
CAMP OUALITY UK - P0 Box 5088, Derby, DE23 95A. Tel/Fax 07000 422 677. A non-profit making charitable organisation providing "holidays of a lifetime" in the UK for those children who are suffering from cancer. Sac
CANCER AID LISTENING LINE -20 Swan Street, Manchester, M4 SIW. Tel 0161 834 6551 Helpline on 0161 835 2586 or 0161 434 8668 (24 hours).
CANCER AND LEUKAEMIA IN CHIILDHOOD -12-13 King Square, Bristol, B52 Sal. Tel 0117 924.8844. Help and advice for sufferers under age of2l.
CancerBACUP - 3 Bath Place, Rivington Street, London, EC2A 33R. Information, counselling and support for people with cancer, their families and friends. Information 0171 6132121 or 0800 181199. Publishes a range booklets. http://www.cancerbacup.org.uk
CANCER BLACK CARE - 16 Dalston Lane, London, ES 3Az. Tel 0171 249 1097/Fax 249 0604. Providing practical, physical and emotional support for people affected by cancer.
CANCER CARE SOCIETY - Jane Scarth House, 39 The Hundred, Romsey, Hants, SOSi ROE. Tel 01794830 374/Fax 518 133. Counselling, support groups, a comprehensive range of approved complementary therapies.
CANCER LARYNGECTOMY TRUST - Bill Moloney, Claremount House, Claremo
unt Road, Halifax, Hx3 6AW. Tel/Fax 01422 364 448.fFor those who have had throat cancer and a laryngectomy
CANCERLINK - 11-21 Northdown Street, London, Ni 9BN. Tel 0171 833 2818/Fax 833 2818. Provides support for self help groups and for individuals. Helpline 0800 132 905. Asian helpline 0800 590 415. Young peoples helpline 0800 591 028. E-Mail cancerlink@canlink.demon.co.uk
CANCERKIN - Royal Free Hospital, Pond Street, Hampstead, London, NW3 2QG. Tel 0171 830 2323/ Fax 0171 830 2324. Extended rehabilitation for breast cancer patients.
CHRIS'HAN LEWIS TRUST - Child Care Centre, 62 Walter Road, Swansea, SAl 41111'. Tel 01792 480 500/Fax 480 700/Helpline 0800 303 031. Support for children and their families concentratmg on quality of life issues by way of community based nursing care, befriending and crisis breaks.
COLON CANCER CONCERN - 4 Rickett Street, London, 5W6 1RW. Infoline 0171 381 471/Fax 381 5752. Aims to sustain quality of life, incrcase the cure rate, provide information and flind research.
DR JAN DE WIw~R CLINIC - 6 New Road, Brighton, BN1 lUF. Tel 01273 727213. Advice and information for those who are dissatisfied with their NHS diagnosis and advice.
HOSPICE INFORMATION SERVICE - St Christopher's Hospice, 51-59 Lawrie Park Road, London, 5E26 6DZ. Tel 0181 778 9252. Publishes a comprehensive directory of UK hospices.
JAMES McDONALD CANCER TRUST - Jo McDonald, 117 High Street, Worle, Weston-Super-Mare, B522 OHB. Tel 01934510230. Helpline 0468 525 525. Offers information, advice, support and counselling. Provides complementary therapies and holidays for cancer patients. Sac.
MACMILLAN CANCER RELIEF - 15/19 Britten Street, London, 5W3 3TZ. Tel 0171 351 7811. Funds specialist Macmillan nurses and doctors, buildings for cancer treatment and care, grants for patients in financial difficulties.
MARC' S LINE (Melanoma And Related Cancers of the Skin) - Dermatology Treatinent Centre, Level 3, Salisbury District Hospital, Salisbury, Wiltshire, SP2 8BJ. Tel 01722 415 071. Resource Centre and helpline. Education about skin cancer.
MARIE CURIE CANCER CARE - 28 Belgrave Square, London, SW1X SQG. Tel 0171 235 3325.Provides care in patients' homes and in 11 nationwide centres. Supports medical research.
NATIONAL CANCER ALLIANCE CIBE) - P0 Box 579. Oxford, 0X4 1LP. Tel 01865 793 566/Fax 01865 251 050. Campaigns for higher quality Cancer Services for all who need them. Publishes a directory of Cancer Specialists £5.70 ind. P&~
NATIONAL HEREDITARY BREAST CANCER -National helpline on 01629 813 000.
NEW APPROACHES TO CANCER - Cohn Richardson, 5 Larksfield, Egham, Suney, Tw20 ORB. Tel 01784 433 610. Information on holistic and selfhelp methods of treatment.
OESOPHAGEAL PATIENTS ASSOCIATION -David Kirby, 16 Whiteflelds Crescent, Solihull, B91 3NU. Information, advice and support for oesophageal cancer patients and their families.
Meetings twice a year in regional centres.
PROSTATE CANCER CHARITY (THE) - Du Cane Road, London, W12 ONN Helpline 0181 3831948/Office 383 8124/Fax 383 8126. Information and advice. http://www.prostate-cancer.org.uk
RETINOBLASTOMA SOCIETY - Jenny Coates, St Bartholomew's Hospital, West Smithfield, London, EC]A 7BE. Tel 0171 600 3309/Fax 0171 600 8579. Local contacts. Information for fitmilies and health eare professionals. E-mail rbin@rbsociety.org.uk http :flw'?'r'&.rbsociety.org.uk
SARGENT CANCER CARE FOR CHILDREN -Diane Yeo, 14 Abingdon Road, London, Wa 6AF. Tel 0171 565 5100 /Fax 0171 565 5120. Aims to support all young people with cancer and their families through high quality counselling, financial help and practical care.
WCT Hemline for Men with Cancer - Wessex Cancer Trust, Bellis House, 11 Westwood Rd, Southampton, S017 1DL. Tel 01703775 611/Fax 672266. Support and self help for sufferers of testicular cancer and their families and friends. E-Mail wct@wct.kweb.co.uk www.k-web.co.uk/charity/wct/wct.html
WOMEN'S NATIONAL CANCER CONTROL CAMPAIGN - Suna House, 128/130 Curtain Road,London, EC2A 3AR. Tel 0171 729 4688/Fax 0171613 0771/lIelpline 0171 729 2229.
CANDIDA OVERGROWTH
NATIONAL CANDIDA SOCIETY - Dr Christine Tomlinson, P0 Box 151, Orpington, Kent, BRS 1UJ. Tel 01689 813 039. Information for people with candida overgrowth and for health care professionals.
CARBON MONOXIDE EXPOSURE
CO SUPPORT - Debbie Davis, 25 Swardiffe Road, Leeds, LS14 5LE. Tel 0113 260 5112/Fax 0113 228 1505.
CARDIOMYOPATHY see Car&omyopathy Association under Heart
ABLE COMMUNITY CARE - 2nd Floor, West Wing, 69-75 Thorpe Road, Norwich, NR1 1UA. Tel 01603 764 567/Fax 761 655. Nationwide rotational live-in-home earer service.
ANCHOR CARE ALTERNATIVES - 206 Worple Road, Wimbledon, London, 5W20 8PN. Tel 0181 946 8202/Fax 944 7431. Care workers are available to assist people in their own homes on a flexible basis.
ACT - Stella Elston, 65 St Michael's Hill, Bristol, BS2 8DZ. Tel 0117 922 1556. Services are available to ramilies caring for a child with a life-threatening or terminal condition. Sac.
ASSOCIATION OF CROSSROADS CARE
ATTENDANTS - 10 Regent Place, Rugby, CV2 I 2PN. Tel 01788 573 653/Fax 01788 565 498. Advice and information for people who care for a disabled person at home. Loeal branches in England & Wales.
BEFRIENDING NETWORK - Diana Senior, 11 St Bernards Road, Oxford, 0X2 6EH; Id 01865 316 200 OR Josefine Speyer, 20 Heber Road, London, NW2 6AA. Tel 0181 208 2853. Aims to help those critically ill at home and their carers. Beftiends, supports and gives the carer a break.
CARERS NATIONAL ASSOCIATION - 20-25 Glasshouse Yard, London, EClA 4J5. Tel 0171 4908818/Fax 0171 490 8824. Information/support for those caring for relatives or friends. Carerslffle 0345573 369, 10am - 12pm, 2pm - 4pm.
PRINCESS ROYAL TRUST FOR CARERS - 142 Minories, London, EC3N iLIB. Tel 0171 480 7788/Fax 0171 481 4729. A national network ofCarers Centres who provide practical help,
CAVERNOUS HAEMANGIOMA see under Disfigurement
CENTRAL NERVOUS SYSTEM TUMOURS see also under Bratn Tumour
TUMOURS OF THE CENTRAL NERVOUS SYSTEM - Roger Gould, Flat 2, 36 Manor Park, London, 5E13 SRN. Tel/Fax 0181 333 8769.
CENTRAL NUCLEAR MYOPATHY contact Myotubular Myopathy Support Group do Contact a Family under Family
CEREBELLAR ATAXIA ATROPHY/ DEGENERATION see under Ataria
CEREBRAL GIANTISM see under Solos Syndrome
CEREBRAL PALSY see also ListeningBooks and Hyperbaric Oxygen Trust under Brain Injured:SCOPE - Kirsty Semple, 6 Market Road, London, N7 9PW. Tel 0171 619 7100/Fax 0171 619 7399. Helpline 0800 626 216. Supports 230+ local groups, provides services, advice and information.
SOCIETY OF STARS - Carol Hehir, MBE, New Barn Farm, Seer Green, Beaconsfield, Bucks, HP9 2Q7. Tel 01494 872 235/Fax 01494 875 532.Celebrity support for children and adults with cerebralpalsy. Offers advice and support.
THE LEARNING CENRRE FOR DISABLED CHILDREN - View Road, Cliffe Woods, Rochester, ME3 SUJ. Tel 01634 220 330/Fax 220 530. For young children with CP, a holistic process to achieve goals like eating, sifting, walking and talking.
CEREBROSIDE LIPIDOSIS contact Gauchers Association under GaucherSs Disease
CHARCOT-MARIE-TOOTH contact CMTunder Hereditary Motor & Sensory Neuropathy
CHEDIAK-HIGASHI SYNDROME see Primary Immuno-leficiency Association under Immune Deficiency Syndromes
CHILD ABUSE/DISTRESS/HELP see also Kidscape under Bullying
CARELINE - Cardinal Heenan Centre, 326 High Road, Ilford, Essex, 101 1QP. Tel 0181 514 1177. Offers a confidential telephone counselling service for children, young people and adults. Face to face service for adults.
CHILDLINE - 2nd Floor, Royal Mail Buildings, Studd Street, London, Ni OQW. Tel 0171 239 1000/Fax 0171 239 1001. Free telephone helpline for children on 0800 1111.
CHILDBIRTH see under pregnancy achice
CHILDMINDERS/CHILDMINDING PROVISION
NATIONAL CHILUMINDING ASSOC~ON -Gill Haynes, 8 Masons Hill, Bromley, BTU 9EY. Tel 0181 464 6164/Fax 0181 290 6834. Membership orgamsation. Advice and information. Network of local support groups.
PAREI'lTS AT WORK - Sarah Jackson, 45 Beech Street, London, EC2Y SAD. Tel 0171 628 3565/Fax 0171 628 3591. Information on child care provision for working parents.
CHILDREN IN CARE see Family Rights Group under Family
CHOROIDERAEMIA see under RetinItis Pigmentosa
CHRISTMAS DISEASE see under Haemophilia
CHROMOSOMES (RARE DISORDERS):www.genetics-swt.org
CHROMOSOME 4 contact MTSSG under WolfHirschorn S'ndrome
CHROMOSOME 5 see under Cri du Chat Syndrome
CHROMOSOME 13 TRISOMY, CHROMOSOME 18 TRISOMY see SOFT UK under Trisomy
CHROMOSOME 21 TRISOMY see under Down's Syndrome
CHROMOSOME 22q 11 CHROMOSOME 22a 11 GROUP - Phil Mellor, P0 Box 48, Altricham, Cheshire, WA14 SFB. Tel 01614855155.
CHRONDROECTODERMAL DYSPLASIA see under Ellis Van Creveld Syndrome
CHRONIC DEGENERATIVE CHOREA see under Huntingdon '5 Disease
CHRONIC FATIGUE SYNDROME see under Myalgic Encephalomyelitis
CHRONIC GRANULOMATOUS DISORDER:CGD RESEARCH TRUST - Rosemarie Rymer, Manor Farm, Wimbome St Giles, Dorset, B}i21 5NL. Tel/Fax 01725517977.
CHRONIC MUCOCUTANEOUS CANDIDIASJS see Primary Immunodeficiency Association under Immune Defwiency
CHRONIC OBSTRUCTIVE AIRWAYS DISEASE see under Lung
CHURG~STRAUSS SYNDROME see under Guillaine-Barre Syndrome, ArthrItis Care Stuart Strange Trust under Wegener's Granulomatosis
CJD see under Creutzfeld-Jakob
CLEFT LIP
CLEFT LIP AND PALATE ASSOC Gareth Davies, 138 Buckingham Palace Road, London, SWiW 95A. Tel 0171 824 8110/Fax 0171824 8109. Support, advice, educational material.
CLOACAL EXSTROPHY see under Stoma,also Bladder
CLOVERLEAF SYNDROME see underCraniofacial
CLUB FOOT contact STEPS under Lower Limb Abnormalities
COELIAC DERMATITIS HERPETIFORMIS) see also BDF under Digestive Disorders
COELIAC SOCIETY - P0 Box 220, High Wycombe, Bucks, HP1I 2HY. Tel 01494 437 278 (9am -2.3Opm). Far those medically diagnosed. Advice on diets and on where to obtain gluten-free food.
COFFIN-LOWRY SYNDROME:COFFIN-LOWRY SYNDROME SUPPORT GROUP- Mrs L Nolan, 25 Ashling Gardens, Denmead, Waterlooville, P07 6PR. Tel 01705 610 226
COGAN SYNDROME COGAN SYNDROME SUPPORT GROUP - Marcia Firtli, 3 Fernbank Avenue, Bramley, Leeds, L513lBS. Tel 01132578550COHEN SYNDROME
COHEN SYNDROME SUPPORT GROUP - Mrs F Osborn, 7 Woods Court, Brackley, Northamptonshire,NN13 6HP. Tel 01280704515.
COLD SORESCOLD SORE ADVICE LINE - Marian Nicholson, 41 North Road, London, N7 9DP. Send sac for advice sheets or tel 0171 700 1171 (noon to 2pm only).
COLITIS see under Crohn '5 Disease
COLOBOMA contact MACS under Micropthalmia
COLONIC HYDROTHERAPY see underIrritable Bowel Syndrome
COLOSTOMY see Stoma
COMBAT STRESS see Combat Stress underMental Illness
COMBINED IMMUNE DEFICIENCY DISEASE contact Primary Immunodefwiency Association under Immune Deficiency Syndromes
COMPULSIVE SPENDING see also underDebt
WALLETWATCH - Lawrence Michaels, 61 White-house Way, Southgate, London, N14 7LX, Tel 0181 361 2411. Confidential advice for compulsive spenders and impulse buyers (after 7pm Mon to Fri).
CONGENITAL ADRENAL HYPERPLASIA::CONGENITAL ADRENAL HYPERPLASIA - Miss M L Cull, 17 Newton Road, Liclifield, Staffs, W5137EF. Tel 01543 252 961. Support and information.
CONGENITAL . AGLOSSIANo group currently exists but Mr John Wright would be happy to correspond possibly with a view to creating a group. 63 CaIdwell Road, Nuneaton, Warwicksliire, CVl 1 4QE
CONGENITAL. APLASTIC ANAEMIA see underFanconi anaemia
CONGENITAL. AREGENERATIVE ANAEMIAcontact Diamon d-Biackfan Anaemia Suppon Group via Contact a Family under Fanilyr
CONGENITAL. CERVICO-THORACIC-VERTEBRAE SYNOSTOSIS contact Ijippel-Feil Syndrome do Contact a Family under Family
CONGENITAL. CENTRAL HYPOVENTILATION SYNDROME (orIgInally known as Ondine's Curse)ONDINE'S SUPPORT GROUP - Linda Middleton,24 Larners Road, Dereham, NorfOlk, NR19 iLE. Tel01362 696 509. Provides information and contacts.
CONGENITAL. DISLOCATED HIP contact STEPS under Lower Limb Abnormalities
CONGENITAL HYPOPLASTIC ANAEMIA contact Diamond-Blackfan Anaemia Suppon Group do Contact a Family under Family
CONGENITAL. MUSCULAR DYSTROPHY:CMD SUPPORT - Mrs Marion H West, 21 Morrison Drive, Pitoorthie, Dunfermlme, Fife, KYl 1 5D3. Tel01383 736084.
CONGENITAL. NEUTROPENIA contact Primary Immunodefwiency Association under ImmuneDeficiency Syndromes, also ShiwicAman Group
CONGENITAL. OSSEOUS TORTICOLLIS contactKlippel-Feil Syndrome Group via contact a family under Family
CONGENITAL. PANCREATIC INSUFFICIENCYcontact Shwachman Syndrome Support Group
CONG. RUBELLA DAMAGE contact SENSE under Deaf/Blind
CONG. THOMSEN'S MYOTONIA contact Myotonic Dystrophy Support Group
CONSTIPATION see BDF under Digestive Disorders
CONSTRUCTION SITE ACCIDENTS
safety issues in the construction industry. Support for those killed or injured in construction site accidents.Tony O Brien c/o Trussler Hall 78 Grundy Street London E14 Tel 01715377220
CONTRACEPTION:BROOK ADVISORY CENTRES - 165 Grays Inn Road, London, WC1X BUD. Tel 0171 713 9000/Fax 833 8182. 24 hour Relpline 0171 617 8000.
COOLEY'S ANAEMIA see under Thalassaemia
COPROLALIA SYNDROME see under Tourette Syndrome
Cori SYNDROME contad Association for GSD under Glycogen storage Diseases
CORNELIA DE LANGE SYNDROME (Amsterdam Dwarf Syndrome):CORNELIA DE LANGE SYNDROME FOUNDATION - Alan Peaford, Tall Trees, 106 Lodge Lane, Grays, Essex, RM16 2UL. Tel 01375 376439
CORPUS CALLOSUM ABSENCE see under Aicardi syndrome
COSMETIC SURGERY see also under Disfigurement
COSMETIC SURGERY NETWORK THE) - P0 Box 3410, London, N6 4EE. Tel/Fax 0181 209 0862.Passes patient experiences and information to prospective patients.
COT-DEATH see also SANDS under stilbirth
CARE OF NEXT INFANT - Room Cl, Stephenson Unit, Sheffield Children's Hospital, Western Bank, Sheffield, 510 2TH. Tel 0114 276 6452. Support for families of subsequent babies following a cot death.
COT DEATh RESEARCH AND SUPPORT FOR BEREAVED PARENTS - Jim McDonald, 117 High Street, Worle, Weston Super Mare, BS22 OEm. Tel 0468 525 525 (24 hour). Counselling and befriending.Funding research. Supplies monitoring equipment.
COT DEATh SOCIETY - Geoff Noble, 10 High Street, Thatcham, RG19 3JD. Tel 01635 861 771/Fax 866 252. Loans monitors on request to parents who feel baby is at risk. Resuscitation video.
FOUNDATION FOR THE STUDY OF INFANT DEATHS - 14 Halkin Street, London, SwiX 7DP. Tel 0171 235 0965/Fax 0171 823 1986Leaflets, facifiles, student pack, books and videos.Helpline on 0171 235 1721(24 hours).
CRANIOFACIAL (including Apert, Carpenter, Cloverleaf Crouzon, Jackson- WeissCRANIOFACIAL SUPPORT GROUP SteveMoody, 44 Helmsdale Road, Leamington Warwickslijre, CV32 7DW. Tel 01926 334 629such as saggital synostosis and conditions featuring craniosynostosis. Sae for information.
CREUTZFELDT-JAKOB DISEASE CID SUPPORT · NETWORK - Gillian Turner,Birchwood, Heath Top, Ashley Heath, Market Drayton, Shropshire, TF9 4QFL Tel/Fax 01630 673993. Helpline 01630 673 973. Offers advice,information, emotional arid practical support.
CRI DU CHAT SYNDROME
CRI DU CHAT SYNDROME SUPPORT GROUP -Mrs A Stokes, 7 Penny Lane, Barwell, Leicestershire,LE9 8HJ. TeI/Fax 01455 841 680.
CRIME - VICTIM SUPPORTVICTIM SUPPORT - Cranmer House, 39 Brixton Road, London, SW9 6DZ. Tel 0171 735 9166/Fax 0171 582 5712. Helpline 0845 3030 900. Staff and trained volunteers in local schemes provide support, information and practical help to victims of crime.
SAMM (Sunnort After Murder and Manslaughter) -Cranmer House, 39 Brixton Road, London, SW9 6DZ. Tel 0171 735 3838
CROHN9S DISEASE see also BDF underDigestive Disorders
CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION - Parkgate House, 356 West Barnes Lane,Motspur Park, Surrey, KT3 6NB. Tel 0181 949 6209.
Promotes research. Offers help and support to sufferers and parents of sufferers.
NATIONAL ASSOC FOR COLITIS AND CROHN'S DISEASE - 4 Beaumont House, Sutton Road, St Albans, ALl Stif'. Tel 01727 844 296/Fax862 550. Information and support through local groups. http://www.nacc.org.uk.
CROUZON SYNDROME under Craniofacial
CRYING/SLEEPLESS BABIES/DEMANDING CHILDREN:SERENE (Incorporating Cry-sis) - BM Cry-sis, London, WC1N 3Xx. Helpline 0171 404 5011 8am-11pm. Support for families of excessively crying, demanding babies/young children. Sae for list.
CUSHING'S DISEASE/CUSHING SYNDROMEASSOCIATION FOR CUSHING'S TREATMENTAND HELP - Elaine Eldridge, 54 Powney Road, Maidenhead, 5L6 6EQ. Tel 01628 670 389/Fax 415603. Information and patient4o-patient contact. UK medical panel
CUSHING CARE - Mrs V Hawartli, Meadows, Woodplnmpton Village, Preston, Lancashire, PR4 OLT. Tel/Fax 01772 690680.
CUTIS HYPERELASTICUM see under Ehlers-Danlos Synarome
CYCLICAL VOMITING SYNDROME:CYCLICAL VOMITING SYNDROME ASSOCIATION - Nicola Kipping, 5 Anthony's Avenue, Lilliput, Poole, Dorset, BH14 8JQ. Tel 01202 709 194.
CYSTIC FIBROSIS
CYSTIC FIBROSIS TRUST - 11 London Road, Bromley, Kent, BRi mY. Tel 0181 464 7211/Fax 0181 313 0472. Befriending & advisory service at the local level. Also finance and respite holidays.
CYSTIC FIBROSIS YOUJH LINE - 27 Spencer Street, Carlisle, CAl lEE. Te! 0800 454 482 Mon-Fri 3pm-6pm. Advice and information to young people (12-18 years) on education, grants, bullying, jobs,pregnancy, infertility, allowances, transplants etc.
CYSTIC HYGROMA see also Interstitral Cystitisunder Cystits
CYSTIC HYGROMA & LYMPHANGIOMA SUPPORT - Pearl Fawler, Villa Fontane, Church Road, Worth, West Crawley, RH1O 4RS. Tel 01293885 901/Fax 01293 882 460. Information, contact and support for fiunilies and sufferers.
CYSTITIS AND CANDIDA ADVICE SERVICE Angela Kilmartin, 9. 6-9 Bridgewater Square, London, EC2Y SAH. Tel/Fax 0171 256 2993.
INTERSTITIAL CYSTITIS SUPPORT GROUP Anthony Walker, 76 High Street, Stony Strafford, Buckinghamshire, MKI 1 1AH. Tel/Fax 01908 569169. Contact. Information for medical professionals and the public. Supports research.
DANCING EYE SYNDROME (also known as Opsoclonus Myoclon us)DANCING EYE SYNDROME SUPPORT GROUP -Mrs J Stanton-Roberts, 78 Quantock Road, Worthing,West Sussex, BN13 211Q. Tel/Fax 01903 532 383.
DANDY-WALKER SYNDROME SUPPORT - Mrs J McKeown, 19 Ennismore Road, Liverpool, Li 3 2AR. Tel015I281 1341.
DEAFNESS
BEETHOVEN FUND FOR DEAF CHILDREN -Ann Rachun, P0 Box 16975, London, NW8 6ZL. Tel 0171 5868107/Fax 7227981. Helping deaf children learn to speak through musical speech therapy.
BRITISH DEAF ASSOC - 1-3 Worship Street, London, EC2A 2AB. Tel 0171 588 3250/Fax 0171 588 3527. £3.99 for information pack.
BRITISH DEAF SPORTS COUNCIL - Roland Haythornthwaite, 7a Bridge Street, Otley, Leeds,LS21 1BQ. Tel 01943 850 214/Fax 01943 850 828/Minicom 01943 850 081. Encourages
indoor/outdoor sport at regional and national level.
DELTA - P0 Box 20, Illaverhill, Suffolk, CB9 7BD. Tel 01440 783 689. Voluntary association of deaf adults, parents and teachers of deaf children who work to help deaf children listen and talk.
FYD - East Court Mansion, College Lane, East Grinstead, W Sussex, RH19 3LT. Tel 01342 323 444.Aims to integrate deaf and hearing young people.
HEARING CONCERN - Christopher Meyer, 7-11 Armstrong Road, London, W3 73L. Tel 0181 743 1110/Fax 742 9043/Minicom 742 9151. Clubs nationwide. Information, educational and recreational activities. E-Mail hearing.concern@ukonliine.co.uk
HEARING DOGS FOR DEAF PEOPLE - Anthony Blunt, Training Centre, London Road, Lewimor, Oxfordshire, 0X9 SkY. Tel 01844 353 898/Fax 01844 353 099. Trains unwanted dogs to alert severely deaf people to important sounds. E-Mail info@hearing~dogs .co.uk
LINK CENTRE FOR DEAFENED PEOPLE -19 Harifield Road, Eastbourne, East Sussex, BN2 I2AR. Tel 01323 638 230/Fax 649 968. Practical helpfor the profoundly deaf and their finnily.
NATIONAL ASSOCIATION OF DEAFENED PEOPLE - P0 Box 50, Arnersham, Buckinghmnshire, IIP6 6XB. Tel 01494723 613/Fax 01494431 932.
NATIONAL DEAF CHILDEN'S SOCIETY - 15 Dufferin Street, London, EClY SPD. Tel 0171 4908656/Fax 0171 251 5020. Information and advice.Lending library of equipment. Helpline on 0171 2500123 (voice and text). E-Mail ndcs@netcomuk.co.uk
POST SCUIT - Victoria Mill, 3rd Floor, Compstall Mill Estate, Andrew Street, Compstall, 5K6 SHN. Tel 0161 449 9650. National subtitling library for deaf people. Sub4itled video library for deaf and hearing unpaired people including feature films, bobbies, documentaries, children's progrrunrnes.
ROYAL ASSOCIATION OF DEAF PEOPLE - Walsingham Road, Colehester, C02 7BP. Tel 01206 509 509/Fax 769 755. Centres where the profoundly deaf can meet and socialise. Also services- interpreting, information and counselling.
ROYAL NATIONAL INSTITUTE FOR DEAF PEOPLE - 19-23 Featherstone Street, London, EC 1 Y SSL. Tel 0870 60 50 123, text/Fax 0171 296 8199.Information, residential care, support and training. Campaigns on behalf ofdcafpeople.
THE ELIZABETh FOUNDATION FOR DEAFCHILDREN - Sotiffiwick Hill Road, Cosham,Portsmouth, P06 3LL. Tel 01705 732 735/FaxiMinicom 01705 326 155. Support to parents (freenational correspondence and advisory course).
DEAF/BLIND
DEMBLIND UK - Maureen Jobson, 100 Bridge Street, Peterborough, PEl IDY. Tel 01733 358100/minicom/voice 358 858 qwerty/fax 358 356.Assessing deaffilind individuals and advising local authorities. Helpline on ~0800 132 320.
SENSE National Deaf-Blind and Rubella Association) - Rodney Clark, 11-13 Clifton Terrace, London, N4 35R. Tel 0171 272 7774/Fax 272 6012. Provides services, advice, support and information for deaf-blind people, their families and professionals.
DEBENDOX DAMAGE:DEBENDOX ACTION GROUP - Mrs J Hall, 21 Corden Avenue, Mickleover, Derbyshire, DE3 5AQ.Tel 01332 517896.
DEBT
BANKRUPTCY ASSOC -4 Johnson Close, Abraham Heights, Lancaster, LAl SEU. Tel 01524 64305/Fax 844 001. Offers help and advice for those who are in serious debt and banl~ptcy.
DEPRESSION ALLIANCE - Rodney Elgie, 35 Westminster Bridge Road, London, SEl 7JB. Tel 0171 633 9929/Fax 633 0559. National network of self help groups, peniriend scheme, written advisory service, literature, conferences and workshops.
FELLOWSHIIP OF DEPRESSIVES ANONYMOUSPat Freya, 36 Chestnut Avenue, Beverley, East Yorkshke, HU17 9QU. Tel 01482 860 619/Fax 887634. Local groups, penfriend scheme and newsletter.
DERMATITIS HERPETIFORMIS see underCoeliac
DERMATOMYOSITIS/POLYMYOSITIS
DERMATOMYOSITIS & POLYMYOSITIS SUPPORT GROUP - Leslie Oakley, 146 Newtown Road,Woolston, Southampton, S019 9H}L Tel 01703 449708/Fax 396402. Advice, support and information.
DES EXPOSURE
DES ACTION UK - c/o Women's Health, 52-54 Featherstone Street, London, EC lY 8RT. Tel 01869 337 070/Fax 337 177. Information and support tothose exposed to DES and to the health profession.
DI GEORGE SYNDROME see under Chromosome 22q 11
CONSUMER CREDIT COUNSELLING SERVICE Wade House, Merrion Centre, Leeds, LS2. Tel 0800138 1 Ti 1. Free and independent counselling for anybody with a multiple debt problem.
NATIONAL DERTLINE - Paul Mullins, 318 Summer Iaane, Newtown, Birmingham, B19 3RL. Tel0645 500511/Fax0121 3596357. Confidential advice on mortgage and rent arrears and other debts.
DE LANGE SYNDROME see under Cornelia tie Lange Syndrome
DEMENTIA see also under AlzheimersCANDID (Counselling ANd Diagnosis In Dementia)- National Hospital for Neurology, Queen Square,London, WC1N 3BG. Tel 0171 829 8772/Fax 2090182. Aims to increase access to advice and diagnosisfor people under the age of 65 with dementia.
DEMENTIA CARE TRUST - Kingsley House, Greenbank Road, Bristol, BSS 6HE. Tel 0117 952 5325/Fax 0117 951 8213. Help for carers, relief care at home, counselling, daycare.
DIABETES
BRITISH DIABETIC Assn Mark Flannagan, 10 Queen Anne Street, London W1 . Tel 0171 3231531 diabetes, advice and literature, videos, etc.
INSULIN DEPENDENT DIABETES TRUST -Jenny Hirst, P0 Box 294, Northampton, NN3 2BN.Tel/Fax 01604 721 325. Organisation for people who live with diabetes by people who live with diabetes.
NATIONAL DIABETIC FEDERATION - 36 St David's Crescent, Aspull, Wigan, WN2 1SN. Tel 01942 833 389. Help with related side effects.
DIABETES INSIPIDUS see under Pituitary Disorders and also the under Metabolic Diseases
DIAPHYSEAL DYSPLASIA see under Englemans Disease
DIARRHOEA see BDF under DigestiveDisorders
DENTAL ANXIETY see under phobia
DEPRESSION see also under phobia
DIGESTIVE DISORDERS
DIGESTIVE DISORDERS FOUNDATION 3 St Andrews Place, London, NW1 4LB Tel:020 7486 0341 Fax:020 7224 2012 Email:ddf@digestivedisorders.org.uk
Website: http://www.digestivedisorders.org.uk
DISABILITY (££or children see aiso under Family)
ACTION 19 PLUS c/o Scope, 6 Market Road, London, N7 9PW. Tel 0171 619 7252/Fax 6197380.
ASSOC~OF DISABLED PROFESSIONALS- Sue Maynard Campbell, 170 Benton Ilill, Wakefield Road, Horbury, West Yorkshire, WF4 5HW. Tel/Fax 01924 283 253. Mjnicom 01924 270 335. Employment advice and peer support. Ensuring that legislation takes account of the disabled.
ASSOCIATION OF WHEELCHAIR CHILDREN -33 Humberstone Road, London, E13. Tel 0870 1210050/Fax 0870 1210051
ALL COUNTIES DISABLED CHILDREN'S FUND - 161 Eastwood Old Road, Leigh-On-Sea, Essex, SS9 4Rz. Tel 01702 526 772. Provides mechanical aids and equipment to physically handicapped children.
BANSTEAD MOBILITY CENTRE - Damson Way,Orchard Hill, Fountain Drive, Carshalton, Surrey,SMS 4NR. Tel 0181 770 1151/Fax 770 1211.Information, assessment and training to enable disabled/elderly people achieve optimum mobility.
BCODP (BITTISH COUNCIL OF DISABLED PEOPLE) - Jenny Mitchell, Litchurch Plaza,Litchurch Lane, Derby, DE24 8AA. Tel 01332 295551/Fax 01332 295 .580/Minicom 01332 295
581/Infoline 298 288 1.30-4.3Opm. Supports groups of disabled people and campaigns for their rights.
BLESMA (British Limbless Ex-Service Men's Association) - R Holland, 185-187 High Road, Chadwell Heath, Romford, RM6 6NA. Tel 0181 590 1124/Fax 0181 599 2932. Provides advice, counselling, rehabilitation, residential and convalescent homes - Also offers financial assistance.
BRITISH COMPUTER SOCIETY DISABILITY GROUP - Dr Geoff Busby, c/o EASAMS, West Haningfield Road, Great fladdow, Chelmsford, CM2 8IlN. Tel 01245 242 950/Fax 478 317. Promotes the usc of IT to help people with all disabilities. Journal and local groups. hup ://www.abilitynet.eo.uk
BRITISH WHEELCHAIR RACING ASSOCIATION- Dr Ian Thompson, 18 The Avenue, Redcar, Cleveland, TS1O 2AP. Tel 01642476 169.
BRITISH WHEELCHAIR SPORTS FOUNDATION- Guttmann Centre, Guttmann Road, Stoke Mandeville, Bucks, HP21 9PP. Tel 01296 395 995 /84848. National organisation which promotes opportunities for the disabled to take part m recreational and competitive wheelchair sport.
CALVERT TRUST - John Crosbie, Little Crosthwaite, Under Skiddaw, Keswick, CA12 4QD.
CAMPING FOR THE DISABLED - David Griffiths,20 Burton Close, Dawley, Telford, TF4 2BX. Tel01743 761 889/Fax 01743 761149. adventure holidays and courses for people with disabilities. Also operates centres at Exmoor (01598 763221) and Kielder (01434250232).
CARE AND REPAIR - Nicky Wilkins, Castle House, Kirtley Drive, Nottingham, NG7 iLD. Tel 0115 979 9091/Fax 0115 985 9457. Advice with housing repairs and adaptations for people who are older, disabled or living on low incomes.
CHALFONT LINE HOLIDAYS -4 Medway Parade, Perival, Middlesex, UB6 Slut. Tel 0181 997 3799/ Fax 991 2892. Specialist holidays for the disabled.
CHARM (Children with Hand or Arm Deficiencies) -Mrs C Forrester, 22 Auchauan Gardens, Finglassie, Glenrotlies, KY7 4TU. Tel 01592 631 227. For parents of children with hand and/or arm deficiencies.
CONOUEST - Ursula Hulme, 3 Beverley Close, East Ewell, Epsom, KT17 3HB. Tel 0181 393 6102. To promote the relief and rehabilitation of the physically disabled through active participation in flie visual arts.
COUNCIL FOR DISABLED CHILDREN - 8 Wakeley Street, London, ECIV 7QE. Tel 0171 843 6000/Fax 0171 278 9512. A wide range oftaetsheets for children with special needs, holidays, education, sports, leisure and respite care.
CRYPT FOUNDATION - Valerie Fethney, Forum, Stirling Road, Chichester, 019 2EN. Tel 01243 786064. Oppoitnarilties for young people (18-30) to live independently with support in small group homes.
DEMAND - Chapel of the Good Shepherd, Mallard Road, Abbots Langley, Hertf£ordsliire, WD5 OGQ. Tel 01923 681 800/Fax 01923 682 400. Designs and manuflictures flirniture and equipment for people with disabilities where no other solution exists.
DATA (Disability Access to Technology Association)- Broomfield House, BoIling Road, Bradford, West Yorkshire, BD4 7BG. Tel 01274 370 019/Fax 723861£ Free vocational IT training for disabled people.
DIAL UK - Dorothy McGahan, St Catherine~s Hospital, Ticllliill Road, Doncaster, DN4 8QN. Tel 01302 310 123/Fax 01302 310 404. 100+ disability information and advice centres run by local people with direct disability experience.
DISABILITY ADVICE AND WELFARE NET-WORK - 64-66 Bickerstaffe Street, St Helens,Merseyside. Freephone on 0500 827 463/Fax 01744451 215. Comprehensive disability information.
DISABILITY ALLIANCE - 88-94 Wentworth Street,London, El 7SA. Te! 0171 247 8776/Fax 0171 2478765. Information. Disability Rights Handbook.Advice Line 0171 247 8763 Mo~eds 2Apm.
DISABILITY EOUIPMENT REGISTER 4Chatterton Road; Yate, Bristol, B517 4BJ. Tel 01454 318 818/ Fax 01454 883 870. National service for disabled people to buy, sell or exchange specialist equipment
DRT (Disability Resource Team) - Pelmark Road, 11 Amwell End, Ware, Hertfordshire, SGl2 9HP. Tel01920 466 005/Fax 466 031. Nationwide provider of
disability training/consultancy, publishes Disability Information Bulletin and offers transcription services.
DISABLED DRIVERS' ASSOCIATION -Ashwellthorpe, Norwich, NR16 lEX. Tel 01508 489449/Fax 01508 488173. Offering advice on mobility, equipment, benefits, friendship through local groups, benefits and a DDA magazine.
DISABLED DRIVERS' MOTOR CLUB LTD - Tony Sharp, Cottingliam Way, Thrapston, NN14 4PL. Tel 01832 734 724/Fax 733 816. Specialist and general information for physically disabled drivers. E-Mail ddmc@ukonline.co.uk web.ukonline.eo.uk/ddmc
DISABILITY INFORMATION TRUST - Mary Marlborough Centre, Headington, Oxford, 0X3 7LD. Tel 01865 227 592/Fax 227 596. Assesses a range of disability equipment, publishes independent in-depth information on the items which have been evaluated.
DISABILITY LAW SERVICE - Joanna Cave, 2nd Floor North, High Holborn House, 52/54 High Holborn, London, WC1V 6RL. Td 0171 8318031/Fax 0171 831 5582. Provides free legal advice and representation for people with disabilities.
DISABILITY SPORT ENGLAND - 13 Brunswick Place, London, Nl 6DX. Tel 0171 490 4919/Fax0171 490 4914. Provides, develops and co-ordinates sports opportunities.
DISABLED CHILDREN'S FOUNDATION - 21-23 Royal Chambers, 110 Station Parade, Harrogate,North Yorks, HOI IEP. Tel 01423 509 863/ Fax01423 723 861. Helping disabled children through the use of modern technology.
DISABLED CHRISTIANS FELLOWSHJP - Jenny Edwards, 213 Wick Road, Brislington, Bristol, BS4 4HP. Tel 01633 895 457
DISABLED LIVING - David Massey, 4 St Chads Street, Cheetham, Manchester, MS SQA. Tel 0161832 3678/Fax 0161 835 3591. Information. Regional Disabled Living Centre. Assessment. Holidays and Leisure activities. Art and Craft therapy, etc.
DISABLED LIVING FOUNDATION - 380-384 Harrow Road, London, W9 2HU. Tel 0171 289 6111/Fax 266 2922. Booklets, information packs, database of 14,000+ items of equipment (on CDROM) and large exhibition of equipment for all disabilities and all ages.
DISAWAY TRUST - Roy Sheridan, 2 Charles Road, London, SW19 3BD. Tel/Fax 0181 5433431. Group holidays for the physically disabled to Mediterranean.
DOGS FOR DISABLED - Peter Gorbing, The Old Vicarage, London Road, Ryton on Dunsmore, Coventry, CV8 3ER Providing trained dogs for disabled people (other than those registered blind or deaf). Also training, find-raising and social activities.
FLYABILITY - 9 Oaklands Court, Hempstead Road, Watford, WD1 3LF. Tel/Fax 01923 231 066. Hang-gliding and para-gliding for the disabled.
GARDENING FOR DISABLED TRUST - Felicity Seton, Frittenden House, Frittenden, Cranbrook, TN17 2DG. Tel 01580 852 120. Provides financial and practical assistance for disabled people to take an active part in gardening.
HALLIWICK ASSOC~ON OF SWIMMING THERAPY - Eric Dilley, CIO ADKC Centre,Whitstable House, Silehester Road, London, W1O 65B. Tel/Fax 0181 968 7609.
HANDICAPPED ANGLERS TRUST & BOATING FOR THE DISABLED - Brian Dunn, Taigh Na lasgair, Russell Close, Little Chalfont, Bucks, HP6 6RE. TeIffax 01494 764 333. Specially designed boats for the disabled to enjoy water-borne pleasures.
HOLIDAY CARE SER~E - 2nd Floor, Imperial Buildings, Victoria Road, Horley, RH6 71'Z. Tel 01293 774 535/Fax 01293 784 647. Provides travel and holiday information for the disabled through a computerised database. Information on UK facilities and on selected overseas destinations.
KIDS Children with Special Needs) -80 Waynflete Square, London, W1O 6UD. Tel 0181969 2817/Fax 969 4550. Home-based learning,respite care, integrated nurseries, holiday playseheme.
Birmingham, Fareham, Hull, North and West London.
LIMBLESS ASSOCIATION - Rehabilitation Centre, Roehampton Lane, London, 5W15 5PR Tel 0181 788 1777/Fax 0181 788 3444. Advice, rehabilitation volunteer visits to home and hospital, magazine, representations to local and national government.
MAVIS (Mobility Advice and Vehicle Information Service) -
The MAVIS Assessment Centre will cease conducting driving assessments from
A similar information and assessment service is available from the Forum of Mobility Centres. To find your nearest centre either call the National Forum Enquiry Line on 0800 559 3636 or visit their website, http://www.mobility-centres.org.uk.