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EATING DISORDERS ASSOCIATION, EHLERS
- DANLOS SUPPORT GROUP ENCEPHALITIS SUPPORT GROUP ENURESIS RESOURCE & INFORMATION CENTRE EPILEPSY ASSOCIATION OF SCOTLAND Epilepsy Action:(wasBRITISH EPILEPSY ASSOCIATION) New Anstey House, Gate Way Drive, Yeadon,
Leeds, West Yorkshire, LS19 2XY Helpline:0808 800 5050 Tel:0113 210 8800
Fax:0113 391 0300Email:epilepsy@bea.org.uk Website:http://www.epilepsy.org.uk FAMILY HEART ASSOCIATION FELLOWSHIP OF DEPRESSIVES ANONYMOUS FOUNDATION FOR THE STUDY OF INFANT DEATHS FPA (FAMILY PLANNING ASSOCIATION) GAMBLERS ANONYMOUS GAYSCAN GENERAL MEDICAL COUNCIL GENERAL OSTEOPATHIC COUNCIL GINGERBREAD GLAXO NEUROLOGICAL INFORMATION CENTRE GUIDE DOGS FOR THE BLIND ASSOCIATION GUILLAIN-BARRE SYNDROME SUPPORT GROUP NATIONAL ECZEMA SOCIETY - 163 Eversholt Street, London$NW1 1BU. Tel 0171 388 4097/Fax0171 388 5882. Information, advice and support.www.eczema.org MISCELLANEOUS GROUPS :: DISABILITY
MEDICAL ENGINEERING RESOURCE UNIT-Geoffrey Sheppard, 8 Damson Way, Orchard Hill, Queen Mary~S Avenue, Carshalton, SM5 4NR. Tel 0181 770 8284/Fax 0181 770 8398. Individual aids and services for children and young adults which are not commercially available.
MOBILITY INFORMATION SERVICE - Unit 2a, Ateham Estate, Upton Magna, Shrewsbury, SY4 4UG. Tel 01743 761 S8WFax 761 149. Free telephone advice. Range of leaflets, stickers and booklets.
MOTABILITY - Goodman Rouse, Station Approach, Rarlow, CM2O 2ET. Tel 01279 635 666. Ensuring that the best value for money is obtained purchasing cars and wheelchairs.
NATIONAL ASSOCIATION OF BIKERS WITH A DISABILITY Parkview Centre, Hardman Street, Stockport, SK3 ODR. Tel 0161 480 3380.Adaptations of motorcycles, tiikes and scooters.Advice on licensing and insurance etc.
NATIONAL ASSOCIATION OF SWIMMING CLUBS FOR THE HANDICAPPED - Mike O'Leary, The Willows, Mayles Lane, Wickham, P017 5ND.Tel 01329 833 689. Association promotes swimming for disabled. NATIONAL STAR CENTRE COLLEGE OF FURTHER EDUCATION, - Ullenwood, Cheltenham, GL53 9QU. Tel 01242 524 478/Fax 01242 222 234. Provides supported learning for young people with physical disabilities to enable them to develop the skills necessary for an independent life. OPPORTUNITIES FOR PEOPLE WITh DISABILITIES - 1 Bank Buildings, Princes Street, London, EC2R SEU Tel/Fax 0171 726 4961. Trains and prepares people with disabilities for a worthwhile employment match. Network of 19 Regional Centres. OUTREACH - Rev J Kirby, 7 Grayson Close, Stocksbridge, Sheffield, S36 5BJ. Tel 0114 288 5346/Fax 288 5346. 24hr lifeline for the elderly, housebound or disabled who needs help, lonely, depressed or simply needs someone to talk to. PARENTABILITY ENational Childbirth Trust)Loma McLaughlin, Alexandra House, Oldham Terrace, Acton, London, W3 6NH. Tel 0181 992 2616/Fax 992 5929. Supporting disabled people in pregnancy, through childbirth and with parenthood. RADAR (Roval Association for Disabilitv and Rehabilitation) - 12 City Forum, 250 City Road, London, EClY SAF. Tel 0171 250 3222/Fax 2500212/Minicom 250 4119. Information. Pressure Group for civil rights, social services and employment. Comprehensive range of publications REACH (Association for Children with Hand or Arm Deficiency) - Sue Stokes, 12 Wilson Way, Earls Barton, NN6 ONZ. Tel/Fax 01604 811 041. Support and advice for families and carers of children with upper limb deficiency. RYA SAILABILITY - RYA House, Romsey Road, Eastleigh, Hampshire9 SOSO 9YA. Tel 01703 627 400/Fax 620 545. Sailing for disabled people. E-Mail info@ryasailability.org SEOUAL TRUST Mrs A Pughe, 3 Plough-mans Corner, Wharf Road, Ellesmere, Shropshire, SYl2 OEJ. Tel 01691 624 222. Communication aids for the profoundly disabled, eg remote controlled computers and page turners - supplied on free loan. SHOPMOBILITY - Trudy Riordan, Unit 35, The Octagon Centre9 Park Street, Burton upon Trent, DEl4 3TN. Tel 01283 515 191. Shopmobility Directory - places you can hire a wheelchair, centres with tacilities and suitable access for disabled people. SKILL National Bureau for Students with Disabilities) - Deborah Cooper, Chapter House, 18-20 Crucifix Lane, London. Tel 0171 274 0565/Fax 7377477. DISABILITY HELPLINE - Sue Bums, Rela Goldhill Lodge, Wolfson Court, Limes Avenue, London, NWIl 9TJ. Tel 0181 455 9655. Runs a database on benefits, equipment, self-help groups, alternative treatments and other help lines. UPHILL SM CLUB - Dr Lisa Hall, The Print House, 18 Ashwin St .Dalston, London, ES 3DL. Tel 0171254 1944/Fax 436 2601 Training/lacilities for winter sports for all needs and ages. Ski school and training centre in the Cairngorms for those with special needs. WHIZZ-KIDZ - Shuna Kennedy, I Warwick Row, London, SWIE SER. Tel 0171 233 6600/Fax 0171 233 6611. Helps disabled children by the provision of lightweight, powered and sports wheelchairs. VITALISE (was WINGED FELLOWSHIP TRUST) Respite and holiday care for severely disabled people at 5 purpose-built UK centres, with or without their regular carers.
CHANGING FACES - 1/2 Junction Mews, London, W2 1PN. Tel 0171 7064232/Fax 0171 7064234. LET'S FACE IT - Christine Pift 14 FallowifeldYateley, Hampshire, GU46 6LW. Tel 01252 879630/Fax 872 633 OR, Julia Wallace, 62 Fortescue Rd, Edgeware, Middlesex, HAS OHM. TcI/Fax 0181 931 2829. Information/advice, counselling, newsletter.Aims to link people with facial disfigurement or their families and friends, with professionals. RED BLACK WHITE - 47 Old Hineldey Road, Nuneaton, Warwickshire, CV1O OAA. Tel/Fax 01203 333 343. For children under 18 who are suffering from Port Wine Stain and other birthmarks where suitable treatment is not available on the NHS. UK CENTRE FOR DISFIGUREMENT - P0 Box 7, Cupar, Fife, KYlS 4PF. Tel 01337 870 281/Fax 01337 870 310. Resource Centre, literature, magazine, conferences, books and a register of specialist services and laser clinics
ADFAM National - Waterbridge House, 32-36 Loman Street, London, SEl OEE. Tel 0171 928 8900/Fax 928 8923. National helpime for the fiunilies and the friends of dmg users, confidential support and information. Support to families of prisoners using drugs. Training and a range of publications. DRUGCARE - 29 Upper Lattimore Road, St Albans, ALl 3UA. Tel 01727 861 084. Confidential advice.Helpline on 01727 834 539. For those who see drugs and/or alcohol as a problem - either as a user, a friend or a family member. DIVERTICULAR DISEASE see BDF under Digestive Disorders ACCESS AND CHILD CONTACT CENTRES - Eunice Halliday, St Andrew's with Castlegate Church, Goidsrnith Street, Nottihgham, NOl 5ff. Tel/Fax 0115 948 4557. Provides a network of safe access and child contact centres for children to be able to meet and play with parent(s). FAMILIES NEED FATHERS - Trevor Berry, 134 Curtain Road, London, EC2A 3AR. Tel 0171 6135060. Airns to help to rnaintain a child's relationship with both parents following a divorce or a separation. NATIONAL COUNCIL FOR THE DIVORCED AND SEPARATED - Dorothy Squires, P0 Box 519, Leicester, LE2 3ZE. Provides social activities through 115 nationwide branches. Counselling centres. Information and advice. DOMESTIC VIOLENCE see Sexual Abuse. DOWN'S SYNDROME ASSOCIATION - 155 Mitcham Rd, Tooting, London, SW17 9PG. Tel 01816824001. Comprehensive booklet (sae +£2.50). DOWN'S HEART GROUP - Penny Cantilupe Close, Eaton Bray, Dunstable, Tel 01525 220 379/Fax 221 553. Support. BRITISH DSP SUPPORT GROUP - Room 2, Mont Hamel House, 2 Chapel Place, Rarrisgate, Kent, CTI I9RY. Tel 01843 587 356/Fax 587 523. Information. DUCHENNE MUSCULAR DYSTROPHY see under Muscular Dystrophy DUMB see also under Speech BLISSYMBOL COMMUNICATIONS - Gillian Nelms, Ace Centre, Ormerod School, Waynflete Road, Headington, Oxford, 0X3 8DD. Tel 01865 763 508/Fax 01865 750 188. Provides a means of communication using graphic symbols. DWARFISM contact Child Growth Foundation DYSAUTONOMIA SOCIETY OF GB - Mrs R Jacobs, 41 Francklyn Gardens, Edgeware, MiddlesexHAS 8RU. Tel 0181 958 8760.
DYSKERATOSIS CONGENITA SOCIETY - Mark Stewart, 33 Caledonian Place, Montrose, DD1O 8TL.Tel 01674 672 506. ADULT DYSLEXIA AND SKILLS DEVELOPMENT CENTRE, - 5 Tavistock Place, London, WC1H9SN. TelOl7l 388 8744. BRITISH DYSLEXIA ASSOCIATION - 98 London Road, Reading, RG1 SAU. Tel 0118 966 2677. Helpline 0118 966 8271. http://www.bda-dyslexia.org.uk
DYSLEXIA 2000 NETWORK - 336 Brixton Road, London, SW9 7AA. Tel 0171 924 9559/Fax 0171 207 7796. Offers advice, assessments, counselling, magazine, discussion and support. DYSLEXIA INSTITUTE - 133 Gresharn Road, Staines, Middlesex, TWIS 2A3. Tel 01784 463 851/ Fax 01784 460 747. Nationwide centres provide advice and information, assessment and training. http://www.dyslexia-inst.org.uk .
HELEN AIRIELL DYSLEXIA CENTRE -Frensham, Farnliam, Surrey, GUlO 3BW. Tel 01252792 400/Fax 795 669. Assessment, tuition and other services Teacher training/school support. Bursaries. ACTION FOR DYSPHASIC ADULTS - 1 Royal Street, London, SF1 7LL. Tel 0171 261 9572/Fax0171 928 954 . Information, support and advice.
DYSPRAXIA FOUNDATION - S West Alley, Hitchin, Hertfordshire, 5G5 lEG Tel 01462 455 016/Fax 455 052/Helpline 454 986. Literature for schools, parents and professionals. Supports research. Information pack £2, A4 sae + 39p stamp. THE DYSTONIA SOCIETY - 46/47 Britton Street, London, ECIM SNA. Tel 0171 480 5671/Fax 490 5672. Advice, information and local contacts. DEBRA (Dystrophic Epidermyolosis Bullosa Research Association) - John Dart, Debra House, 13 Wellington Business Park, Duke's Ride, Crowthorne, Berks, RG45 6LS. Tel 01344 771 961/Fax 762 661. EATING DISORDERS ASSOCIATION - Nicky Bryant, 1st Floor, Wensum House, 103 Prince ofWales Road, Norwich, NRI 1DW. Tel 01603 621414 OVEREATERS ANONYMOUS - P0 Box 19Stretford, Manchester, M32 9EB. Tel 07000 784 985.12 step recovery programme. ECTODERMAL DYSPLASIA, SUPPORT, GROUP, - Diana Perry, 108 Charlton Lane, Cheltenbam, GLS39EA. Tel01242231 754. ECTOPIA VESICAE see under Bladder
EDWARD'S SYNDROME contact SOFT under Trisomy EDUCATION/EDUCATION AT HOME, (1nformation on educating your child at home). See also under Bullying and Special Educational Needs, ADVISORY CENTRE FOR EDUCATON - lb Aberdeen Studios, 22 Highbury Grove, London, N52DQ. Tel 0171 354B318/Fax 354 9069/Helpline 3548321. Independent advice. Special expertise in SEN. HOME EDUCATION ADVISORY SERVICE - Eric Foggin, P0 Box 98, WeIwyn Garden City, ALS 6AN.Tel/Fax 01707 371 854. WESTWORLD-WIDE EDUCATION) HOME SCHOOL - 17 Blagrave House, Reading, ROl iQA.Tel 0118 958 9993. Course and tutorial support for parents wishing to educate children age 5-11 at home. NATIONAL ASSOCIATION FOR THE EDUCATION OF SICK, CHIILDREN - Dr Carolyn Skilling, 18 Victoria Park Square, Betlinal Green, London, E2 9PF. Tel 0181 980 8523/Fax 980 3447. Advice and information for parents of sick cliildren. Web page: http://www.ednsick.demon.co.uk
EHLERS-DANLOS SUPPORT GROUP - c/o Valerie Burrows, I Chandler Cl, Richmond, North Yorkshire, DL1O 5QQ. Tel 01748 823 867/Fax 823 867. THE EKBOM'S SUPPORT, GROUP - Mrs E W Gill, 2 The Green, Chedburgh, Bury St Edmunds, Suffolk,1P29 4UE. CINNAMON TRUST - Foundry House, Foundry Square, Hayle, Cornwall, TJU7 4HH. Tel 01736 757 900. Charity for elderly people and their pets. Volunteers help elderly owners with day to day care and fostering when in hospital. Register of UK old peoples homes accepting pets. COUNSEL AND CARE -Twyman House, 16 Bonny Street, London, NWI 9P0. Tel 0171 485 1566. Advice and information on issues affecting older people including residential aceomodation, care at home and benefits. Range of factsheets available. ELDERLY ACCOMMODATION COUNCIL - 46a Chiswick High Road, London, W4 1 SZ. Tel 0181 995 8320/Fax 0181 995 8320/Helpline 742 1182. Detailed nationwide information on all types of accommodation for the elderly. Also offers advice on,Top-up funding to cover any shortfall in fees. RELATIVES ASSOCIATION - S Tavistock Place, London, WC1H 9SN. Confidential helpline 0171 916 6055/Fax 916 6093. Support and information for people thinking of moving into a home for older people or caring for someone in a home. Advice on fees, homes and standards. Supports local groups. CIRCUIT - P0 Box lUZ, Newcastle Upon Tyne, NE99 1UZ. Confidential support group for people with electrical sensitivity brought on by their exposure to invisible electromagnetic fields. Information and advice. Sae please. POWERWATCH - Jean & Masdair Philips. Tel 0897 100 800 (premium rate). Provides information and advice about the effects of electric and magnetic fields on health. ELLIS-VAN CREVELD FOUNDATION - Yvonne Sunon, Farthingdale Farm, Haelanans Lane, Purleigh , CM3 6RW. Tel 01621 828914. PORTIA TRUST - Ken Norman, The Croft, West Common, Bowness on Solway, Cumbria, CAS SAG. TeI/Fax 016973 51820. Aims to help the emotionally disturbed, particularly if this involves trouble with the law. Rest home for distressed/disturbed women. EMPHYSEMA see BrItish Lung Foundation under Lung ENCEPHALITIS SUPPORT GROUP - 44a Market Place, Malton, North Yorkshire, Y017 7LW. Tel/Fax 01653 699599. Information, advice and support. ENCOPRESIS see under Bed Wetting NATIONAL ENDOMETRIOSIS SOCIETY - Suite 50, Westminster Palace Gardens, 1-7 Artillery RowLondon, SWlP lRL. Helpline 0171 222 2776/Fax 0171222 2786. Local group and contacts. Information. ENURESIS see under Bedwetting ENGLEMANS DISEASE also known as Diaphyseal Dysplasia No group currently exists but June Hartley would be interested in starting a group or corresponding with others. Please write to Mrs June Hartley, 72 Long-house Road, Mixenden, Halifax, Yorks, Hx2 SRF. ERB'S PALSY SUPPORT GROUP - Karen Hillyer, 2 Willoughby Close, Coventry, Warwickshire, CV32GJ. Tel 01203 452 321. Information and support. EPIDERMOLYSIS BULLOSA see under Dystrophic Epidermolysis
BRITISH EPILEPSY ASSOCIATION - 40 Hanover Square, Leeds, L53 lBE. Tel 0113 243 9393/Fax 0113242 8804/Helpline 0800309030.
EPILEPSY AND THE YOUNG ADULT - 13 Crondace Road, London, 5W6 4BB. Tel 0171 7360123/Fax 0171 384 2630. Produces a booklet "Epilepsy and the Young Adult" and offers a comprehensive information and advice service.
EPILEPSY BEREAVED - P0 Box 112, Wantage, Oxon, 0X12 8XR. Tel/Fax 01235 772 850. Support line for bereaved parents 01235 772 852. Supporting bereaved through epilepsy. Promoting research. http://www.bodley.ox.ac.uk/external/epilepsy FABLE (For A Better Life with Epilepsy) - The Old Bank, 239-241 Croakes, Sheffield, 510 1TF. TeI/Fax 0114 268 4977. Freephone advice 0800 521 629.Information and support for vagus nerve stimulation therapy in epilepsy. NATIONAL SOCIETY FOR EPILEPSY - Chalfont St Peter, Gerrards Cross, Buckinghamshire 5L9 ORI. Tel 01494 601 300/Fax 01494 871 927. Heipline 01494 601 400. Medical research, outpatient care, assessment, residential care and training etc. EPISPADIAS see under Bladder EXOMPHALOS see under Bowel Disorders EXSTROPHY OF THE BLADDER see under Bladder also Stoma
FABRY'S DISEASE RESEARCH GROUP - Mrs S Hill, 10 Broadmeadow Road, Weymauth, Dorset, DT4 9BS. Tel 01305 774443. Information/contact. FACIOAURICULOVERTEBRAL SYNDROME see under Goldenhar Syndrome FACIOSCAPULOHUMERAL MUSCUL AR DYSTROPHY contact FSH Muscular Dystrophy Suppon Group under Muscular Dystrophy FAMILIAL ATHEROSCLEROSIS contact Family Heart Association under Heart FAMILIAL GOUT/FAMILIAL JUVENILE GOUT (Lesch-Nyhan Syndrome) contact PUMPA under Metabolic FAMILIAL HAEMORRHAGIC TELANGECTASIA contact Telangiectasia Group FAMILIAL SPASTIC PARAPLEGIA - FSP SELF HELP GROUP - Mrs Sally Langron, 116 Queens Road, Leicester, LE2 3FL. Tel 0116 270 0450. Collecting details on how the disease affects different families age on onset, degree of disability and passes this information to research organisations. FAMILY see also under Parents AFTERMATH - P0 Box 414, Sheffield, S4 7RT. TeI/Fax 0114 275 8520. Support and counselling for families of serious offenders. CONTACT A FAMILY - .170 Tottenuarn Court Road, London, WiP OHA. Tel 0171 383 3555/Fax 0171 383 0259. Network of local gmups for parents of children with special needs Assists with the setting up new groups. Contact address for a large number of support groups. http://www.cafamily.org.uk/ FAMILY CRISIS LINE - Tel 01483 722 533 (10am-lOpm). Confidential service for those suffering from any problem, bereavement, grief, depression, stress. FAMILY RIGHTS GROUP - The Print House, 18 Ashwin Street, London, E8 3DL. Tel 0171 923 2628/Fax 0171 923 2683. Assists families with children in care or residential accommodation or involved in child protection procedures. FAMILY SERVICE UNITS 207 Old Marylebone Road, London, NW1 5QP. Tel 0171 402 5175/Fax 0171 724 1829. Counselling, welfare and legal advice. Offices in all areas of the United Kingdom. INSTITUTE OF FAMILY THERAPY - 24-32 Stephenson Way, London, NWI 2HX Tel 0171 391 9150/Fax 391 9150. Specialises in family and couple therapy. Also problems for families, children, adojescents, marital problems, divorce, separation, illness and bereavement. IN TOUCH - Ann Worthington, 10 Norman Road, Sale, Cheshire, M33 3DF. Tel 0161 905 2440. Promotes informal contacts for parents of children with rare disorders to enable them to offer and receive support and exchange ideas and information. NATIONAL FAMILY MEDIATION - 9 Tavistock Place, London, WC1H 95N. Tel 0171 383 5993/Fax383 5994. Provides an impartial mediator following family breakdown due to divorce or sep aration. PARENT NETWORK Room 2, Winchester House, 11 Cranmer Road, London, 5W9 6EJ Tel 0171 7351214/Fax 735 4692. Trains parents and professionals in offering accredited parenting skills courses.Parents, grandparents and carers are mast welcome. FAB - Arm & Rick Dudarenko, 82 Park Hills Road, Bury, BL9 9AP. Tel 0161 797 4114. Provides news, information and support. FAT WOMEN'S GROUP - Diana Pollard, Suite 147, 56 Gloucester Road, Kensington, SW7 4UB. To celebrate fat women. Promotes events, ad hoc meetings, campaigning and networking etc. FEET:SOUL MATES - Ann Cross, 46 Gordon Road, Chingford, London, E4 6BU Tel 0181 524 2423. For people with odd-sized feet or only one foot. Sae. FEMINISING TESTES SYNDROME see under Androgen Insensitivity FETAL ANTI-CONVULSANT SYNDROME, FACS CNational Fetal Anti-Convulsant Group) -Linda Hamilton, Newton of Brux, Glenkindie, Aberdeenshire, AB33 SEC. Tel 01975 571340. FIBROMYALGIA ASSOCIATION - P0 Box 206, Stourbridge, West Midlands, DY9 SYL. Tel 01384 820 052/Fax 869 467 Offers counselling, information and support. FIBROSING ALVEOLITIS see British Lung Foundation under Lung FIRST ARCH SYNDROME contact Treacher Collins Syndrome Suppon Group FITS AND FAINTS - Trudie Lobban, P0 Box 175, Stafford Upon Avon, Warwickshire, CV37 8YD. Tel/Fax 01789 450 564. Mobile 0378 233 999. Information provided covers all non-epileptic seizures including reflex anoxic seizures.
FLOATING HARBOR SYNDROME CONTACT GROUP - Mrs S. Sinclair, 27 Hatfield Road, Dagenham, Essex, RM9 6JR. Tel 0181 5176842. FOSTERING see under Adoption and Fostering FRAGILE X SOCIETY - Mrs Lesley Walker, 53 Winchelsea Lane, Hastings, TN35 4L0. Tel 01424 813 147. Local support, advice and information. FRIEDREICH'S ATAXIA see under Ataxia FUCOSIDOSIS contactSociet y for Mucopolysaccharide Diseases under Metabolic Diseases GALACTOSAEMIA SUPPORT GROUP - Mrs S Bevington, 31 Cotysmore Road, Sutton CoalfieldWest Midlands, B75 6BJ. Tel 01213785143. GALLSTONE/GALL BLADDER DISEASE see British Liver Trust under Liver GAMBLERS ANONYMOUS - P0 Box 88, London, SWIO OEU. Helpline 0161 9765000, GAMCARE - Suite 1, 25-27 Catherine Place, Westminster, London, SWiE 6DU. Tel 0171 233 8988/Fax 233 8977. Helpline 0845 6000 133. Information, advice and support for young people with gambling problems, their families and friends.Publications/newsletter. GASTROSCHISIS EXOMPHALOS EXTROPHIES see under Bowel Defects and Abnormalhies GAUCHERS ASSOC- Susan Lewis, 25 West Cottages, London, NW6 IRI. Tel 0171 4331121. GBS - see under Group B Streptococcus GENERALISED TIC SYNDROME see under Tourette Syndrome GENETIC DISORDERS for male genetic disorders see Also under Men's Health GENETIC INTEREST GROUP - 29-35 Farringdon Road, London, EC 1M 3JB. Tel helpline Mon-Fri9.30am4.3Opm 0171 430 0090. For people affected by genetic disorders, family members/professionals Can direct people to specialist regional centres. GIANT CELL ARTERITIS see Stuart strange Trust under Wegener's Granulomatosis NATIONAL ASSOCIATION FOR GIFTED CHILDREN - 540 Elder House, Elder Gate, Milton Keynes, MK9 1LR Tel 01908 673 677/Fax 01908673 679. SUPPORT SOCIETY FOR CHILDREN OF HIGH INTELLIGENCE - John Walker, P0 Box 4222, London, SE22 SXG. Tel 01386 881 938. Supports children in the top 5% of intelligence with the problems that they may encounter. GILLES DE LA TOURETTE SYNDROME see under Tourete Syndrome GLANZMANN'S THROMBOASTHENIA - GLANZMANN'S THROMBOASTHENIA GROUP - Mrs M Buxton, 28 Duke Road, Newton, Hyde, Cheshire, 5K14 4J8. Tet 0161 36802119. INTERNATIONAL GLAUCOMA ASSOCIATION -King's College Hospital, Denmark Hill, LondonSES 9R5. Tel 0171 737 3265/Fax 0171 3465929.
GLOMERULONEPHRITIS contact BrItish Kidney Patient Association under Kidney GLUTEN SENSITIVITY contact Coeliac Society GLYCOGEN STORAGE DISEASE - ASSOCIATION FOR GSD - Ann Phillips, 9 Lindop Road, Hale, Altrincham, WAlS 9DZ. Tel 0161 9807303/Fax 2263813. GOLDENHAR SYNDROME CONTACT GROUP Nicola Woodgate, 9 Hartley Court GardensCranbrook, TN17 3QY. Tel 01580 714042. GORD see under Gut Motility Disorders GORLIN SYNDROME SUPPORT GROUP - Mr Costello, 11 Blackberry Way, Penwortharn, PrestonLancashire, PRI 9LQ. Tel 01772 748 137. CHILDREN NEED GRANDPARENTS - Ronald Fryer, 2 Surrey Way, Laindon West, Basildon, Essex, SS15 6PS. Tel 01268456 929. Offers mutual aid and advice to parents denied access to their grandchildren. GRANDPARENTS' FEDERATION - Noreen Tingle, Moot House, The Stow, Han ow, Essex, CM2O information to grandparents estranged from their young relatives or those in eare. GRANULOMATOUS DISEASES see under Chronic Granulomatous Disorders, GREIG SYNDROME contact Craniofacial Support Group, GROUP B STREPTOCOCCUS BACTERIUM DAMAGE, GROUP B STREP SUPPORT - Jane Plumb, P0 Box203, Haywards Heath, West Sussex, RH16 lOF.Tel/Fax 01444416 176. Sae and 2 x 1st class stamps.E-mail info®gbss.org.uk http://www.gbss.org.uk CHILD GROWTH FOUNDATION - 2 Mayfield Avenue, Chiswick, London, W4 lPW. Tel 0181 9950257/Fax 0181 995 9075. Information and advice. RESTRICTED GROWTH ASSOCIATION - Mrs HRawlings, P0 Box 8, Countesthorpe, Leics, LE8 5ZS. Tel/Fax 0116247 8913. Information and advice. GROWTH HORMONE DEFICIENCY contact GHD Suppon Group, c/o Child Growth Foundation above. GUILLAINE-BARRE SYNDROME:GBS SUPPORT, GROUP, - Jane Tempest-Roe, LCC, Eastgate, Sleaford, Lincolnshire, NG34 7EB. Tel/Fax 01529304615. Helpline 0800374803. GULF WAR SYNDROME:GULF, VETERANS ASSOCIATION, 5th Floor, Mea House, Ellison Place, Newcastle Upon Tyne, NE 18XS. Helpline 0191 230 1065. GUT MOTILITY DISORDERS, GUT MOTILITY DISORDERS - Mrs L Prior, 17 Walden Road, Sewards End, Saffron Walden, EssexCB1O 2LE. Tel 01799 520 580 am only. Support and information for parents of affected children. GYNAECOLOGICAL PROBLEMS see under Women's Health,
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