HAEMOPHILIA SOCIETY

Chesterfield House, 385 Euston Road, London, NW1 3AU

Helpline:0800 018 6068

Tel:020 7380 0600

Fax:020 7387 8220

Email:info@haemophilia.org.uk

Website:http://www.haemophilia.org.uk

HEADWAY (BRAIN INJURY ASSOCIATION)

4 King Edward Court, King Edward Street, Nottingham, NG1 1EW

Tel:0115 924 0800

Fax:0115 958 4446

Email:enquiries@headway.org.uk

Website:http://www.headway.org.uk

HEALTH ADVICE FOR TRAVELLERS

Freephone: Health Literature Line, Prolog 5050, Sherwood Park, Annesley, Nottingham, NG15 ODJ

Tel:0800 555777

Fax:0845 6033360

Hearing Concern
95 Gray's Inn Road,
London
WC1X 8TX

Tel 020 7440 9871
Fax 020 7440 9872
Text 020 7440 9873
Website: www.hearingconcern.org.uk

HELP ADOLESCENTS WITH CANCER (HAWC)

1st Floor Post Office Buildings, 338 Hollinwood Avenue, New Moston, Manchester, M40 0JB

Tel:0161 688 6244

Fax:0161 682 4020

Email:niki@hawc.fsnet.co.uk

Website:http://www.mwmsites.com/hawc

HELP THE AGED

St James's Walk, Clerkenwell Green, London, EC1R 0BE

Helpline:0808 800 6565

Tel:020 7253 0253

Fax:020 7251 0747

Email:info@helptheaged.org.uk

Website:http://www.helptheaged.org.uk

HERPES VIRUSES ASSOCIATION - SPHERE

41 North Road, London, N7 9DP

Helpline:020 7609 9061

Tel:020 7607 9061

Fax:On Request

HOSPICE INFORMATION SERVICE

St Christophers Hospice, 51 Lawrie Park Road, Sydenham, London, SE26 6DZ

Tel:020 8778 9252

Fax:020 8776 9345

Email:his@stchris.ftech.uk

Website:http://www.kcl.ac.uk/kis/schools/kcsmd/palliative/his.htm

HUNTINGTONS DISEASE ASSOCIATION

108 Battersea High Street, London, SW11 3HP

Tel:020 7223 7000

Fax:020 7223 9489

Website:http://www.hda.org.uk

I CAN

4 Dyer's Buildings, Holborn, London, EC1N 2QP

Tel:0870 010 4066

Fax:0870 010 4067

Email:ican-ican@btinternet.com

IA (ILEOSTOMY & INTERNAL POUCH SUPPORT GROUP)

PO Box 132, Scunthorpe, DN15 9YW

Tel:0800 018 4724

Fax:01724 721601

Email:ia@ileostomypouch.demon.co.uk

Website:http://www.ileostomypouch.demon.co.uk

IBS NETWORK (Irritable bowel syndrome)

Northern General Hospital, Sheffield, S5 7AU

Tel:0114 2611531

Email:p.j.nunn@sheffield.ac.uk

Website:http://www.Ibsnetwork.org.uk

INCONTINENCE:Help with at www.incontinet.co.uk

THE IMPOTENCE ASSOCIATION

PO Box 10296, London, SW17 9WH

Helpline:020 8767 7791

Tel:020 8767 7791

Fax:020 8516 7725

Email:theia@btinternet.com

Website:http://www.impotence.org.uk

INSTITUTE FOR COMPLEMENTARY MEDICINE

PO Box 194, London, SE16 7QZ

Tel:020 7237 5165

Fax:020 7237 5175

Email:icm@icmedicine.co.uk

INSTITUTE OF CHILD HEALTH

30 Guildford Street, London, WC1N 1EH

Tel:020 7242 9789

Fax:020 7831 0488

Website:http://www.ich.ucl.ac.uk

INSTITUTE OF NEUROLOGY

The National Hospital for, Neurology & Neurosurgery, Queen Square, London, WC1N 3BG

Tel:020 7837 3611

Fax:020 7278 5069

Website:http://www.ion.ucl.ac.uk

INSTITUTE OF ORTHOPAEDICS

Brockley Hill, Stanmore, Middlesex, HA7 4LP

Tel:020 8954 2300 xt 5494

Fax:020 8954 8560

Email:d.sayers@ucl.ac.uk

INSTITUTE OF UROLOGY

48 Riding House Street, London, W1P 7PN

Tel:020 7504 9381

Fax:020 7637 7076

Email:kelly.higgs@ucl.ac.uk

Website:http://www.ucl.ac.uk/uro-neph/

INSULIN DEPENDENT DIABETES TRUST

PO Box 294, Northampton, NN1 4XS

Helpline:01604 668767

Tel:01604 622837

Fax:01604 622838

Email:iddt@pgamgmt.force9.co.uk

Website:http://iddtinternational.org

THE INTERNATIONAL AUTISTIC RESEARCH ORGANISATION/AUTISM RESEARCH LTD

49 Orchard Avenue, Shirley, Croydon, CR0 7NE

Tel:020 8777 0095

Fax:020 8776 2362

Email:iaro@lineone.net

Website:http://www.charitynet.org/iaro

INTERNATIONAL GLAUCOMA ASSOCIATION

Kings College Hospital, Denmark Hill, London, SE5 9RS

Helpline:0207 737 3265

Tel:020 7737 3265

Fax:020 7346 5929

Email:info@iga.org.uk

Website:http://www.iga.org.uk/home.htm

INTERSTITIAL CYSTITIS SUPPORT GROUP

76 High Street, Stony Stratford, Bucks, MK11 1AH

Tel:01908 569169

Fax:01908 569169

Email:info@interstitialcystitis.co.uk

Website:http://www.interstitialcystitis.co.uk

ISSUE (THE NATIONAL FERTILITY ASSOCIATION)

114 Lichfield Street, Walsall, WS1 1SZ

Helpline:01922 722888

Tel:01922 722888

Fax:01922 640070

Email:Webmaster@issue.co.uk

Website:http://www.issue.co.uk

• · HAEMOCHROMATOSIS SOCIETY - Janet Fernau, Hollybush House, Hadley Green, Bamet, ENS 5PIL~ Tel/Fax 0181 449 1363: For those people affected by genetic iron overload and professionals. Sae. E-Mail ghsoc®compuserve~com www.trackint.corn/ghsoc
• · HAEMOPHILIA
• · HAEMOPHILIA SOCIETY - Tom Bradley, Chesterfield House, 385 Euston Road, London, NW1 3AU. Tel 0171 380 0600. Sac for information. EMail info@haemophilia-soc.demon.co.uk
• · HAIRLESS PSEUDOFEMALE SYNDROME contact Androgen Insensitivity Support Group
• · HAIRLOSS
• · ACTION AGAINST ALOPECIA - Hilary Grace, 7'West Terrace, Eastbourne, BN2I 4QX. Tel 01323412 723. Web page http://www.lookfantastic.co.uk
• · HAIRLINE INTERNATIONAL/ALOPECIA PATIENTS ASSOC - Elizabeth Steel, LyonsCourt, 1668 High Street, Knowle, Nr Solihull, B93OLY. Tel 01564 775 281. Advice for those who havelost or who are losing their hair. Please send sae.
• · HEAD INJURIES
• · CHILDREN'S HEAD INJURY TRUST - Dr Judith Wardle, Neurosurgery, The Radcliffe Infirmary, Woodstock Road, Oxford, 0X2 6HE. Tel 01865 224786. Local family support groups. Large informationdatabase. Research and aindraising.
• · HEADWAY NATIONAL HEAD INJURIES ASSOC~ON - 4 King Edward Court, King Edward Street, Noningham, NOI lEW. Tel 0115 924 0800/Fax 0115 958 4446. Advice, support and respite care. Campaigns to reduce the number and severity of head injuries. E-Mail headway-national~demon. co.uk
• · HEAD LICE
• COMMUNITY HYGIENE CONCERN - 160 Inderwick Road, London, N8 9JT. Tel 0181 341 7167/Fax 292 7208. Advice on head lice and other common parasites, seabies and toxocariasis. Bug buster kit (head lice) for families. Educational materials for schools and health professionals.
• · HEART see aiso Downs Heart Group under Down's Syndrome
• · ACHD (Association for Children with Heart Disorders) - [England. & Walesi - Gill Hitchen, 26 Elizabeth Drive, Helmshore, Rossendale, BB4 4JB. Tel 01706 213 632. [Scotlan~ - Sandra Parkins, Killieard Houses, Killiecrankie, Pitlochry, PHl6 5LN. Tel 01796 473 204. Friendly support organisation for families and young people with a heart condition. Raising flinds for improved facilities.
• · BRITISH CARDIAC PATIENTS ASSOCIATION (ZIPPER CLUB) - N & K Jackson, 6 Rampton End,Willingham, Cambridge, CB4 5JB. Tel/Fax 01954202 022. Support and practical advice, local groups and Helpline 01223 846 845.
• · BRITISH HEART FOUNDATION - 14 Fitzhardinae Street, London, W1H 4DH. Tel 0171 935 0185/Fax 0171 486 1273. Assists setting up local groups, fluids nursing care and rehabilitation, publieations, videos, advice, educational material and fluids heart research.
• · CARDIOMYOPATHY ASSOCIATION Carolyn Biro, 40 The Metro Centre, Tolpits Lane, Watford, WD1 85B. Tel 01923 249 977/Fax 249 987. For sufferers/tamilies of eardiomyopathy (11ypcitrophic, dilated, restrictive, arrhythmogenie right ventricular).
• · CHILDREN'S HEART FEDERATION - 32 Little-heath, London, SF7 8HU. Heipline (9am - 9.3Opm) 0990 143 404. Support and information to families of children with heart disorders and ongoing contact.
• · CORONARY PREVENTION GROUP - 42 Store Street, London, WC1E 7DB. Tel 0171 580 1070/Fax0171 436 6220. http://www.healthnet.org.uk
• · EVELINA CHILDREN'S HEART ORGANISATION - Sarah Willoughby, Silver Hill, Pen Road, Pen Village, E Sussex. Tel 01424 813 785. Puts parents in touch with one another for mutual help and support.
• · FAMILY HEART ASSOCN - 7 North Road, Maidenhead, Berkshire, 5L6 lPL. Tel 01628 628 638/Fax 01628 628 698. Support/information for those at risk from premature coronary heart disease, esp. inherited blood cholesterol/triglyceride problems.
• · HEART LINE ASSOCIATION - Pam Lawrence, 26 Park Street, Carnberley, GUlS 3PL. Tel 01766 675 655/Fax 01766 676 979. Help and support to children with heart disorders and their families regardless of how slight or severe the condition.
• · HEART LINK - Freepost 5WB42, Bristol, B516 4BR. Tel 0500 676 670 (24 hour). Information, advice and support to heart patients of all ages on all aspects of coronary heart complaints.
• · · HENOCH-SCHONLEIN PURPURA see Stuart Strange Trust under Wegener's Granulomatosis
• · HEMIFACIAL MICRO SOMIA contact Goldenhar Syndrome Contact Group
• · HEMIHYPERTROPHY contact Beckwith Weidemann Syndrome Suppon Group
• · HEMIMEGALENCEPHALY HME CONTACT GROUP - Mr & Mrs D Kerr, 3 Linn Drive, Netherlee, Glasgow, G44 3PT. Tel 0141633 2617
• · HEMIPLEGIA:HEMI-HELP - Hilary Latham, 166 Boundaries Road, London, 5W12 SHO. Tel 0181 672 3179. Contact, support and information.
• · HEPATITIS B and C see British Liver Trust under Liver
• HEPATITIS (VIRAL) see British Liver Trust under Liver
  
  
• HEREDITARY MOTOR AND SENSORY NEUROPATHIES see also under Muscular Dystrophy:CMT International UK - Mrs Margaret Read, 121 Lavernock Road, Penarth, South Wales, CF64 3QG.Tel 01222 709537
  
• HEREDIT. PROGRESSIVE ARTHRO OPTHALMOPATHY see under Stickler Syndrome
  
  HEREDITARY SPASTIC PARAPARESISsee under Familial Spastic Paraplegia
  
  HERNIA
• BRITISH HERNIA CENTRE - 87 Watford Way, Hendon Central, London, Nw4 4RS. Tel 0181201 7000.
  
  HERPES SIMPLEX
  
• THE HERPES VIRUSES ASSOCIATION - Marian Nicholson, 41 North Road, London, Ni 9DP.Helpline 0171 609 9061. Provides a' newsletter, many leaflets and guides. Please send sae for details.
  
  HIRSCHSPRUNG'S see under Gut Motility Disorders
  
• HISTIOCYTOSIS SUPPORT GROUP:Fiona Lynch, 23 Maple Grove, Woburn
  Tel 01908 584 163.

• HOLT-ORAM SYNDROME:HOLT-ORAM SYNDROME SUPPORT GROUP -Mrs D Sigswortli, 21 Forth Road, Redear, Cleveland,TS1O IPN. Tel/Fax 01642 501 283. E-MailHOLT.ORAM@BTINTERNET.COM
  

• CARA - 178 Lancaster Road, London, Wi I IQU. Tel 0171 792 8299/Fax 0171 792 8004. Pastoral care for people affected by HIV.

• EILEEN TRUST (THE) - P0 Box 627, London, SWIH OQG. Tel 0171 799 3184/Fax 233 0839. Offers support to people (other than haemophiliacs) infected with HIV by contaminated blood.

• JEWISH MDS TRUST - Colindale Hopital, Cohn dale Avenue, London, NW9 SHO. Tel 0181 200 0369/Fax 200 1345. To provide the entire Jewish community with WV/AIDS education, counselling and support. Financial support where appropriate.
  
• MACFARLANE TRUST - Alliance House, 12 Caxton Skeet, London, SWlH OQS. Tel 0171 2330342. Haemophiliacs with AIDS from infected blood.

• NATIONAL AIDS HELPLINE - P0 Box 5000,Glasgow, G12 SBR. HeIpline 0800 567 123.Leaflets, counselling (in 10 different languages).

• POSITIVE HELP - 13a Great Iiiing St, Edinburgh, EH3 6QW. Tel 0131 558 1122. Advice/Publications.

• TERRENCE HIGGINS TRUST - 52-54 Grays Inn Road, London, WC1X SJU. Tel 0171 831 0330/Fax0171 242 0121/Helpline 0171 242 1010.
  · HODGKIN'S DISEASE contact Lymphoma Association

• AVERT - Aids Education and Research Tmst - 4 Brighton Road, Horsham, West Sussex, RIll 3 5BA. Tcl 01403 210 202/Fax 01403 211 001. Funding medical research and AIDS education. E-Mail avert£i'dial.pipex.com http://www.avert.org/
• ALED RICHARDS TRUST - Queen Anne House, 8-10 West Street, Old Market, Bristol, B52 OBH. Tel 0117 955 1000. Bath office Tel 01225 444 347.AIDS Counselling, complementary therapies, practical support, grants, drop-in, buddies, benefits advice.

• BLACKLINERS - Eurolink Business Centre, 49 Effra Road, London, SW2 1BZ. Tel 0171 738 7468/Fax 738 7945. Support for black people of Asian, African, Caribbean origins with HIV or MDS.

• BARNARDO'S POSITIVE OPTIONS - 22 Angel Gate, 326 City Road, London, EC1V 2PT. Especially for children affected by HIV or AIDS.

• HORMONE REPLACEMENT THERAPY
  contact Amarant Trust under Menopause, also see
  under Women's Health
  
  HUNTER SYNDROME contact Society for Mucopolysaccharide Diseases under Metabolic flit
  
  HUNTINGTON'S DISEASE
  HUNTINGTON'S DISEASE ASSOCIATION - log Battersea High Street, London, SWi 1 3HP. Tel 0171 223 7000/Fax 0171 223 9489. Offers Fact Sheets, booklets, newsletters, welfare and respite care grants.
  
  HURLER SYNDROME contact Society for Mucopolysaccharide Diseases under Metabolic flis.
  
  
  HYDROCEPHALUS see under Spina Bifida
  
  HYPER lge SYNDROME contact Primary Immunodeficiency Association under Immune Deficiency Syndromes
  HYPERACTIVITY see also under Special Educational Needs and Attention Deficit DisorderHYPERACTIVE CHILDREN'S SUPPORT GROUP
  - c/o Sally Bunday, 71 Whyke Lane, Chichester, West Sussex, P019 iLD. Tel 01903725 -1S2 (Mon-Fri l0am-1pm~Fax 01903 734 726. Offers advice and :support. Please send sae for details.
  

· HYPERCHRONDOPLASIA contact Restricted Growth Association under Growth

· HYPEREXPLEXIA also known as Stiff Baby Syndrome

HYPEREXPLEXIA CONTACT GROUP - Stephanie Samson, 216 Westcott Crescent, Hanwell, London, W7 INU. Tel 0181 5780456.

· HYPERGAMMAGLOBULINAEMIA
contact Primary Immunodeficiency Association under Immune Deficiency Syndromes

HYPERSENSITIVE ARThRITIS contact Arthritis Care also Stuart Strange Trust under Wegener's Granulomatosis

HYPERSENSITIVITY VASCULITIS see Stuart Strange Trust under Wegener's Granulomatosis

HYPERTRIGLYCERIDAEMIA see under Heart

HYPERTROPHIC CARDIOMYOPATHY see under Heart

HYPERTHYROIDISM/HYPOTHYROIDISM see under Thyroid

HYPOPITUITARISM contact GHD Support Group under Growth Hormone deficiency

HYPOHYDROTIC ECTODERMAL DYSPLASIA contact Ectodermal dysplasia Support Group

HYPOMELANOSIS OF ITO

HYPOMELANOSIS OF ITO SUPPORT GROUP - Mrs E Atkinson, 30 Grange Road, Bury, Lancashire, BLS 2PE. Tel 0161 797 5204 (after 4pm).

HYPSARRHYTHMIA see under West Syndrome

HYSTERECTOMY see under Women's Health

I-CELL DISEASE contact Society for Mucopolysaccharide Diseases under Metabolic Dis.

Ichthyosis/Lamella/collodion:Pamela Catlyn, 16 Cambridge Court, Cambridge Avenue, Kilburn, London, NW6 SAn. Tel 0171 461 01356

IDIOPATHIC THROMBOCYTOPENIA PURPURA

!TP SUPPORT ASSOCIATION - Mrs S Watson, Synehurst, Kimbolton Road, Bolnhurst, Bedfordshire, MK44 2EW. TeliFax 01234 376 559. Support, information, patientiparent telephone network.

IDiOPATHIC ERYTHROBLASTOPENIA
contact Diamond-Blackfan Anaemia Support Group do Contact a Family under Family

ILEOSTOMY see under Stoma

IMMOTILE CILIA SYNDROME see under Primaiy Ciliary Syndrome

IMMUNE DEFICIENCY SYNDROMES

PRIMARY IMMUNODEFICIENCY ASSOCIATION - David Watters, A[liance House, 12 Caxton St,London, SW1H OQS. Te! 0171 976 7640/Fax 0171
9767641. Support for patients and fainilies of anyone suffering any of the primary immune deficiencies.

IMMUNISATION see under Vaccination

IMPERFORATE ANUS see under Stoma

IMPOTENCE see also under Men's Health

IMPOTENCE ASSOCIATION - P0 Box 10296, London, SW17 9WH. Tel 0181 767 7791. Advice, information and mutual support for sufferers.

INCONTINENCE for male genito~urinaryproblems see under Men's Health

Association for Incontinence advice:Winchester House, Kennington Park, Cranmer Road,The Oval, London, 5W9 6EJ. Te! 0171 820 8113.
Organisation for health and social care professionals
with a special interest in continence.

COLOPLAST LTD - Peterborough Business Park, Peterborough, Cambridgeshire, PE2 6FX. Tel 01733 392 000/Fax 233 ³⁴⁸/Heipline 0800 220 622. Free advice for people with stomas or continence problems.

CONTINENCE FOUNDATION - 307 Hatton Sq, 16
Baldwin Gardens, London, ECIN 7RI. Te! 0171 404
6875. Helpline 0191 213 0050. Publications and
research. Umbrella body for continence groups.

INCONTINENTIA PIGMENTOSIA contact Ectodermal Dysplasia Support Group

INCONTINENTIA PIGMENTOSUM ACH ROMIANS contact Hypomelanosis Support Group

INDIGESTION see BDF under Digestive

INDUSTRIAL DISEASES
OCCUPATIONAL AND ENVIRONMENTAL DISEASES ASSOCIATION - Nancy Tait MBE, Mitre House, 66 Abbey Road, Bush Hill Park, Enfield,Middlesex. ENI 2QH. Tel 0181 360 8490. Aims to help those suffering from/working to identify and prevent industrial diseases.

· INFANTILE HYPERCALCAEMIA (WILLIAMS SYNDROME)

WIlliams Syndrome foundation Ltd:161 High Street, Tonbridge, Kent, TN6 1BX. Tel 01732 365 152/Fax 360 178 Information, contact,acquiring information, assisting and flinding research.

INFERTILITY see also under Preconceptual

CHILD - Clare Brown, Charter House, 43 St Leonards Road, Bexhill-on-Sea, East Sussex, TN40 IJA. Tel 01424 732 361/Fax 01424 731 858.

Information and advice, support, newsletter. E-mail

DONOR INSEMINATON NETWORK - P0 Box 265, Sheffield, S3 TYX. Tel 0181 245 4369. Network of parents with children conceived with donated gametes - donor insemination (DI) and IVF with donor sperm or donated eggs - and those contemplating or undergoing treatment.

ISSUE ~ie National Fertilitv Association) - Susan Rice, 114 Lichfleld Street, Walsall, West Midlands,WS1 lSZ. Tel 01922 722 S88/Fax 01922 640 070.Help, support, information and counselling. E-Mailwebmaster@issue.co.uk http://www.issue.co.uk.

NATIONAL INFERTILITY AWARENESS CAMPAIGN - P0 Box 2106, London, WIA 3DZ. Tel 0800716345.

INQUEST PROBLEMS

INOUEST - Deborah Coles, Alexandra National House, 330 Seven Sisters Road, London, N4 2PJ. Tel 0181 802 7430/Fax 0181 8027450. Supporting those trying to obtain justice through the coroners inquest system, working to change and improve that system.

· INTESTINAL DISORDERS see under Stoma

· INTESTINAL NEURANAL DYSPLASIA:contact NASPCS under Stoma

· INSULIN DEPENDENT DIABETES see under Diabetes

· INTRAVENOUS:Half PINNT - Riverside Lodge, London Road, Whitehouses, Retford, Nottinghamshire. DN22 7JG. Tel/Fak 01777 710 723. Support for children who feed intravenously. Equipment bank, booklets.

PINNT - P0 Box 3126, Christchurch, Dorset, BH232XS. Tel/Fax 01202 481 625. Brings together healtbcare professionals and patients receiving Intravenous and Naso-gastric Nutrition Therapy.

INTERSTITIAL CYSTITIS see under Cystitis

IRRITABLE BOWEL SYNDROME see also Women's Nutritional Advisory Service under Premenstrual; EDE under Digestive Disorders

lBS NETWORK - Ms P J Nuan, Northern General Hosphal, Sheffield, S5 7AU. Self-help group for people with lBS. For details and a sample copy of Gut Reaction send a large sae and £1 coin. Web site http://www.uel.ac.uk/C.P.Dancey/ibs.html

COLONIC INTERNATIONAL ASSOCIATION - 16 Drummond Ride, Tring, Hertfordshire, HP23 5DE.Not only for lBS sufferers. Colon hydrotherapy utilises purified water treatment. Sae for detajis.

ITO SYNDROME see under Hypomelanosis ITO Syndrome

IVEMARK SYNDROME:IVEMARK SYNDROME SUPPORT GROUP - Liz Fisher, 52 Keward Avenue, Wells, Somerset, BAS 1TJ. E-Mail marcus.fisher@virgin. net

· JACKNIFE SEIZURES see under West Syndr.

· JACKSON-WEISS SYNDROME see under Craniofacial

JOUBERT SYNDROME SUPPORT GROUP -76-78 Coniston Avenue, Little Hulton, Worsley, M38 9WZ. Tel 0161 950 0749. Support for families of children with this rare syndrome.

· JUVENILE RHEUMATOID ARTH~Scontact GRACE under Arthritis

· JUVENILE SPONDYLITIS contactAnhrhis care also La4 Hoare Trust under ArtArits

KARTAGENER SYNDROME see under Primary Ciliary Dyskinesia

· KAWASAKI SUPPORT GROUP - Mrs S Davidson, 13 Norwood Grove, Potters Green, Coventry, CV2 2FR. Tel 01203612 178.

KERATOCONUS SELF HELP - 58 Twyford Avenue, West Acton, London, W3 9QB. Tel 0181993 4759. Information and support.

· KIDNEY see also under Organ Transplantation

BRITISH KIDNEY PATIENT ASSOCIATlON - Mrs E Ward, Bordon, Hants, GU3S 9JZ. Tel 01420 472 021/Fax 01420 475 831. Concerned with the welfare of kidney patients and their families, also campaigns for the provision of more donor organs.

NATIONAL KIDNEY FEDERATION -6 Stanley St, Worksop, Noffs, 581 7Hx. Tel 01909 487 795/Fax 481 723. Support and information, promotes organ donatiorilkidney research, brings together patients, newsletter. E-Mail natkidney@compuserve.com

KINSBOURINE SYNDROME see under Dancing Eye Syndrome

KLEEBLATTSCHAEDEL SYNDROME see under Craniofacial

KLINEFELTER'S SYNDROME

KLINEFELTER'S SYNDROME CLUB UK - David Dennison, P0 Box 554, Bradford, W Yorks, BD9 SYG. Tel 01689 870 785 ffliurs-Sunday after ⁷.3Opm). Run by KS men for KS men (but others can join). Information/advice. E-Mail KSCUK@aol.com http:/members.aol.corn/kscuk/index.htm

KLIPPEL FElL SYNDROME contact Contact a Family under Family also Treacher Collins Syndrome Support Group

KLUMPKE'S PARALYSIS contact Erb's Palsy Support Group

KOHLERS DISEASE contact Perthes Association

KUGELBERG-WELANDER contact Jennifer Trust for Spinal Muscular Atrophy under Spinal Muscular Atrophy